ShellGoldsmith
Member
- Joined
- Apr 28, 2021
- Messages
- 14
- Reason
- CALS
- Diagnosis
- 00/0000
- Country
- US
- State
- WA
- City
- Sedro Woolley
Hello all my hubby has been tested for FALS SOD1 he has a positive mutation and is showing same symptoms his entire father's side showed, now he is starting to show muscle loss in his right leg. we are still fighting for a diagnosis. as of last night we noticed something of concern to us he has lost with out trying 32 pounds in 22 days can i please get some feed back i am worried that he is progressing faster then his father who lived with FALS for 10 years his aunt lived with it for 6 months before she passed so there is no real idea on how fast this can go.