Nanders
Active member
- Joined
- Nov 14, 2019
- Messages
- 30
- Reason
- PALS
- Diagnosis
- 11/2019
- Country
- US
- State
- AZ
- City
- Chandler
Hello I'm Nancy..
Just diagnosed with psuedo-bulbar ALS 2 days ago. I'm 55 yo with 3 adult children & 2 grandsons. My youngest who is 26 and a paramedic is in total denial.He won't talk to me.
My 2 older children ( oldest is 32-dtr & 30-son ) are dealing fairly well. Wanting to know everything and go to my appts. I've been ill with autoimmune issues my whole life, but always been able to have an active full life, so I think it's hard for them to accept mom suddenly becoming unable to function...and it's not going to get better this time.
I've been steadily declining for 2 months now and have had symptoms for 2-3 yrs that were being overlooked as something related to my Rheumatoid arthritis. So I've had this apparently for a couple of years or so...
I look forward to hearing about everyones experiences & sharing our highs and lows together.
Thank you all for taking time to listen!
N
Just diagnosed with psuedo-bulbar ALS 2 days ago. I'm 55 yo with 3 adult children & 2 grandsons. My youngest who is 26 and a paramedic is in total denial.He won't talk to me.
My 2 older children ( oldest is 32-dtr & 30-son ) are dealing fairly well. Wanting to know everything and go to my appts. I've been ill with autoimmune issues my whole life, but always been able to have an active full life, so I think it's hard for them to accept mom suddenly becoming unable to function...and it's not going to get better this time.
I've been steadily declining for 2 months now and have had symptoms for 2-3 yrs that were being overlooked as something related to my Rheumatoid arthritis. So I've had this apparently for a couple of years or so...
I look forward to hearing about everyones experiences & sharing our highs and lows together.
Thank you all for taking time to listen!
N