lgg
Active member
- Joined
- Mar 19, 2020
- Messages
- 39
- Reason
- CALS
- Diagnosis
- 11/2017
- Country
- US
- State
- TX
- City
- San Antonio
For almost a year, my PALS said that everything he puts in his mouth, including water, tastes repugnant. Around Thanksgiving last year, he simply stopped eating because of this. After losing 25 pounds in five weeks, he agreed to drink four Ensures a day as Sawif it was a prescription. That’s all he has had (plus Gatorade) since January. He does try food, but it’s all still bad. Has this happened to anyone? Is it related to ALS. We know it isn’t a reaction to meds. Because of COVID he hasn’t seen an ENT. The appointment keeps getting changed. This disease is miserable enough without taking the joy of eating away too. I’d love to hear if anyone has gone through this and has any ideas. Leslie