Kristina1
Senior member
- Joined
- Jan 26, 2017
- Messages
- 822
- Reason
- PALS
- Diagnosis
- 03/2017
- Country
- US
- State
- MA
- City
- Grafton
If you already know for certain that you want a trach, when is the best time to get one? My team (of doctors) have stressed to me how important it is, for best outcome, to schedule the surgery when there is NOT an emergency/crisis situation. When I asked them when I should do it, they've basically said 'when you're ready,' but reminded me I could have a choking emergency at dinner tonight and end up with an unplanned emergent trach, and they said unfortunately that is the most common type of scenario they see because patients tend to put it off or just be undecided about wanting one or not until it's too late.
It took me 3 years to make a decision, but I've finally decided I do want one. So now I have to decide when.
I'd especially like to hear from trached PALS and their CALS. Do you wish you'd done it sooner or waited longer? What part of your life changed most dramatically?
It took me 3 years to make a decision, but I've finally decided I do want one. So now I have to decide when.
I'd especially like to hear from trached PALS and their CALS. Do you wish you'd done it sooner or waited longer? What part of your life changed most dramatically?