imstillme214
New member
- Joined
- May 26, 2016
- Messages
- 6
- Reason
- PALS
- Diagnosis
- 01/2016
- Country
- Uni
- State
- Pa
- City
- Elkins Park
hello,
This is the first time I've joined any type of forum and from what I've read i feel this is a good place to start to get help to the zillions of questions i have about this new life and maybe my journey will help someone else cope.
I'm a 45 year old woman diagnosis with ALS in January of this year. My symptoms started a year before my diagnosis, almost to the day. i started walking with a limp a very painful one at that. I hate to admit i was embarrassed and very self conscious about it. I was working full time for a finance company and every day on my lunch hour i would go the gym but that my stamina wasn't what it used to be, I noticed i started to scale back on my work outs instead of going to full body work out classes i would ride the elliptical, to the recumbent bike(site down bike). Then in a very short time i stopped bringing my gym bag out the house because i noticed my body wasn't able to handle any sort of work out.
I then decided to see a neurologist whom told me i have diabetic neuropathy and my symptoms would get worse and i should get used to it. I saw about 3 other neurologist and was given an MRI that showed bulging disc in my back and if i get the surgery i would walk out of the hospital good a new. I okayed the surgery and needless to say the surgery didn't t fix my symptoms.
Finally I was directed to Dr,Patters(ALS) doctor that gave me and my family the worse news I've ever received.
A year ago i was walking with a limp and cane and on Monday of this week my electric wheelchair was delivered.(blessing) This week was the first time in over 6 months was i able to make my own morning tea, and bring my boyfriend his coffee.
I've lost almost all ability to walk, i do not have any balance to stand on my own and now i feel the weakness in my right arm, its hard to grip things and write. Through all of this i have noticed that i appreciate the small things in life and my loves one seems to have a better out look on life. We appreciate everything now.
Thanks for allowing me to vent.
Be well everyone.
This is the first time I've joined any type of forum and from what I've read i feel this is a good place to start to get help to the zillions of questions i have about this new life and maybe my journey will help someone else cope.
I'm a 45 year old woman diagnosis with ALS in January of this year. My symptoms started a year before my diagnosis, almost to the day. i started walking with a limp a very painful one at that. I hate to admit i was embarrassed and very self conscious about it. I was working full time for a finance company and every day on my lunch hour i would go the gym but that my stamina wasn't what it used to be, I noticed i started to scale back on my work outs instead of going to full body work out classes i would ride the elliptical, to the recumbent bike(site down bike). Then in a very short time i stopped bringing my gym bag out the house because i noticed my body wasn't able to handle any sort of work out.
I then decided to see a neurologist whom told me i have diabetic neuropathy and my symptoms would get worse and i should get used to it. I saw about 3 other neurologist and was given an MRI that showed bulging disc in my back and if i get the surgery i would walk out of the hospital good a new. I okayed the surgery and needless to say the surgery didn't t fix my symptoms.
Finally I was directed to Dr,Patters(ALS) doctor that gave me and my family the worse news I've ever received.
A year ago i was walking with a limp and cane and on Monday of this week my electric wheelchair was delivered.(blessing) This week was the first time in over 6 months was i able to make my own morning tea, and bring my boyfriend his coffee.
I've lost almost all ability to walk, i do not have any balance to stand on my own and now i feel the weakness in my right arm, its hard to grip things and write. Through all of this i have noticed that i appreciate the small things in life and my loves one seems to have a better out look on life. We appreciate everything now.
Thanks for allowing me to vent.
Be well everyone.
