- Joined
- Aug 28, 2013
- Messages
- 2,869
- Reason
- PALS
- Diagnosis
- 12/2018
- Country
- US
- State
- NC
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- Get Real
TippiLeigh, Being in “limbo” awaiting answers and or a diagnosis
is a frustrating and difficult time to work through.
But… you are not alone. We’ve probably had a hundred Threads
of people in the same situation you are in now.
You’ve had 8 replies from very ALS knowledgeable members.
However, until you are physically seen by a Neurologist and
have any tests he/she determines… there’s not much more that
can be contributed to help you.
My suggestion from what you wrote…
“And based off of many of the stories I’ve read on here from
actually diagnosed ALS patients.”
A little self help… take a break from reading threads/posts of
people who have ALS. It is not a positive thing to do until you
see a neurologist. Again, “limbo” is a stress you can somewhat
relieve by giving this Forum a break too... until you get an
appointment.
Your husband being a doctor most likely would agree.
is a frustrating and difficult time to work through.
But… you are not alone. We’ve probably had a hundred Threads
of people in the same situation you are in now.
You’ve had 8 replies from very ALS knowledgeable members.
However, until you are physically seen by a Neurologist and
have any tests he/she determines… there’s not much more that
can be contributed to help you.
My suggestion from what you wrote…
“And based off of many of the stories I’ve read on here from
actually diagnosed ALS patients.”
A little self help… take a break from reading threads/posts of
people who have ALS. It is not a positive thing to do until you
see a neurologist. Again, “limbo” is a stress you can somewhat
relieve by giving this Forum a break too... until you get an
appointment.
Your husband being a doctor most likely would agree.