mbmurray
Distinguished member
- Joined
- Jan 10, 2013
- Messages
- 117
- Reason
- PALS
- Diagnosis
- 01/2013
- Country
- US
- State
- VA
- City
- NOVA
Hi there
I am told that I am very atypical a case with MND. I have loads of fasciculations and craps all over my body. I have muscle wastage but my muscles are all still functioning and responsive at this stage.
I am curious, atypical in what sense, i.e. does it mean faster or slower progression or just unusual symptoms?
I just got back from a Disney cruise myself tonight. It was difficult to not think about this diagnosis, but I had fun. We even spent 2 days at disneyworld, I was able to walk both days no problem (even tho neurologist states I have clonus in my ankles).
Yeah I am wondering about my symptoms at this point, right shoulder and bicep area pretty much wasted at this point (been a year since I noticed that atrophy, 2 years since I noticed weakness), but tricep and foreman still have muscles. My right arm and hand can function pretty normally, just can lift large/heavy objects above my shoulder.
I have my first ALS clinic appt. on Friday (snowstorm in the forecast, hope it doesn't come), hope to have many questions i have answered, otherwise just trying to live life as normal as possible at this point.