alicat2020
New member
- Joined
- Feb 10, 2020
- Messages
- 3
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- US
- State
- MA
- City
- Peabody
Hi Everybody! Here’s my story and would LOVE your take on my symptoms. At this point I’m extremely worried and can’t look at my kids without crying. I’m trying so hard not to panic but when your facing a possible disease like ALS it’s really hard to stay calm.
Anyways, 2 years ago I developed some shaking of my left hand, difficulty maneuvering items in it but only when I was attempting fine motor movements. Raw strength was ok but i always feel like my left hand is my WEAK HAND and have trouble doing things like opening cans with it and picking up small items with it. My Neuro at the time called it a “focal dystonia” and ordered an EMG to rule out carpal tunnel syndrome. She was adamant it was NOT ALS though and so I went on my merry way. I ended up missing my EMG because my 2 year old son got pneumonia and now I am kicking myself for not rescheduling it!
Fast forward almost 2 years and my left hand is still shaky and slightly weak but no worse than when I first had it checked 2 years ago. However, approximately 1 month ago I developed this tingling sensation in my legs every time I laid down or sat down. It was like an internal vibration/tremor that could be felt but not seen. When I’d try to walk I’d feel like my legs were shaky and could give out at any moment. The vibrating feeling got a little better (but is still there when i stop moving) but I now have mild weakness in one leg, the left, the same side as my weak hand. If i lay on my back i can raise my right leg just fine but when i raise my left leg it shakes and feels much weaker than the right leg.
My primary care doctor checked all my labs and everything was fine. Referred me to the neurologist again and I am now waiting on an appointment with her. What do you all think? I’m terrified, scared, and praying and hoping it’s not ALS. Any input would be great. Thanks for listening.
Anyways, 2 years ago I developed some shaking of my left hand, difficulty maneuvering items in it but only when I was attempting fine motor movements. Raw strength was ok but i always feel like my left hand is my WEAK HAND and have trouble doing things like opening cans with it and picking up small items with it. My Neuro at the time called it a “focal dystonia” and ordered an EMG to rule out carpal tunnel syndrome. She was adamant it was NOT ALS though and so I went on my merry way. I ended up missing my EMG because my 2 year old son got pneumonia and now I am kicking myself for not rescheduling it!
Fast forward almost 2 years and my left hand is still shaky and slightly weak but no worse than when I first had it checked 2 years ago. However, approximately 1 month ago I developed this tingling sensation in my legs every time I laid down or sat down. It was like an internal vibration/tremor that could be felt but not seen. When I’d try to walk I’d feel like my legs were shaky and could give out at any moment. The vibrating feeling got a little better (but is still there when i stop moving) but I now have mild weakness in one leg, the left, the same side as my weak hand. If i lay on my back i can raise my right leg just fine but when i raise my left leg it shakes and feels much weaker than the right leg.
My primary care doctor checked all my labs and everything was fine. Referred me to the neurologist again and I am now waiting on an appointment with her. What do you all think? I’m terrified, scared, and praying and hoping it’s not ALS. Any input would be great. Thanks for listening.
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