ConcernedTeen
Member
- Joined
- Mar 27, 2018
- Messages
- 16
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- GA
- City
- Somewhere
Hi everyone. Thank you in advance for taking the time to read this post. I first came to this forum nearly 4 years ago when my twitching started.
I'm now 22.
Since then, things have gotten worse. I'll keep it short:
2018 - Developed "swan neck" in right index/middle finger
Two EMGS, both came back normal, with a couple fasciculations.
MRI comes back clean.
2019 - Constant twitching, breathing gets slightly worse but still able to jog,walk, small hikes.
2020 - Breathing gets much worse, can no longer hike/run, get air hunger. Told Asthma by Pulmonlogist, but inhaler/bronchodialiter does not improve symptoms. Referred to Mayo Clinic Neurology.
Chest Xray for Lungs and Heart Tests come back all clean.
Before Mayo, have an EMG of right back, right diaphragm, and right leg. Diaphragm appears normal despite breathing difficulties. One Fibrillation on back. Ask doctor and he says not to worry about it.
At Mayo Clinic, do extensive testing for obscure diseases via bloodtests. Nothing found. Do another EMG in the same regions. This time no fibrillations or fasciculations despite breathing difficulties and fatigue. Doctors do not know what the cause is.
2021 - Did not go to any doctors this year, just tried to move on with life. Although breathing seems to be getting slightly worse I have a pulmonogist appt scheduled soon. Still cannot run and enjoy sports like I used to only 4 years ago. Winded after speaking sometimes.
I'm really concerned about seeing numerous doctors and having no answers, while things seem to only decline. Does this sound like it could be an atpyical presentation of ALS symptoms? Any insight would be appreciated, thank you all.
I'm now 22.
Since then, things have gotten worse. I'll keep it short:
2018 - Developed "swan neck" in right index/middle finger
Two EMGS, both came back normal, with a couple fasciculations.
MRI comes back clean.
2019 - Constant twitching, breathing gets slightly worse but still able to jog,walk, small hikes.
2020 - Breathing gets much worse, can no longer hike/run, get air hunger. Told Asthma by Pulmonlogist, but inhaler/bronchodialiter does not improve symptoms. Referred to Mayo Clinic Neurology.
Chest Xray for Lungs and Heart Tests come back all clean.
Before Mayo, have an EMG of right back, right diaphragm, and right leg. Diaphragm appears normal despite breathing difficulties. One Fibrillation on back. Ask doctor and he says not to worry about it.
At Mayo Clinic, do extensive testing for obscure diseases via bloodtests. Nothing found. Do another EMG in the same regions. This time no fibrillations or fasciculations despite breathing difficulties and fatigue. Doctors do not know what the cause is.
2021 - Did not go to any doctors this year, just tried to move on with life. Although breathing seems to be getting slightly worse I have a pulmonogist appt scheduled soon. Still cannot run and enjoy sports like I used to only 4 years ago. Winded after speaking sometimes.
I'm really concerned about seeing numerous doctors and having no answers, while things seem to only decline. Does this sound like it could be an atpyical presentation of ALS symptoms? Any insight would be appreciated, thank you all.