Txu4urtime
Member
- Joined
- Nov 13, 2020
- Messages
- 27
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- CA
- State
- QC
- City
- Montreal
My apologies everyone. Just an update please.
Please do not feel need to reply and please can you kindly wait for the results of new tests before closing post.
Top NM Dr and Director of Top Internationally known ALS clinic and research centre of a large neurological teaching facility has reviewed all my 5 EMGs and assessed me.
I’ve been told atypical presentations are not the norm but not uncommon. It’s very heterogeneous.
Given progressively worsening bulbar symptoms and new muscle wastage they ordered in mid May:
- new EMG: says they have seen cases of clean EMGs in limbs for months.
- Lumbar Puncture looking for neurofilaments (given clean limb EMGs but worsening bulbar symptoms)
- ALS Genetic Testing panel.
Thank you for letting me update you. I will post results when available.
AJ
Please do not feel need to reply and please can you kindly wait for the results of new tests before closing post.
Top NM Dr and Director of Top Internationally known ALS clinic and research centre of a large neurological teaching facility has reviewed all my 5 EMGs and assessed me.
I’ve been told atypical presentations are not the norm but not uncommon. It’s very heterogeneous.
Given progressively worsening bulbar symptoms and new muscle wastage they ordered in mid May:
- new EMG: says they have seen cases of clean EMGs in limbs for months.
- Lumbar Puncture looking for neurofilaments (given clean limb EMGs but worsening bulbar symptoms)
- ALS Genetic Testing panel.
Thank you for letting me update you. I will post results when available.
AJ