Jen800
New member
- Joined
- Sep 15, 2021
- Messages
- 7
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- PA
- City
- Philadelphia
Hello, and thank you in advance for taking the time to help me with my concerns and for this helpful forum. I’m 39, a mom to a 4 year old and 22 month old. I have been having twitching all over my body for 6 weeks now. It started in my back, then moved to my legs, feet, arms, hands, shoulders, face, head, belly, under ribs… everywhere. It’s so disturbing I can’t sleep at night now without a sleep aid.
I did see a neurologist about two weeks ago and my initial exam was good—good strength and reflexes.
but then soon after that appointment, about two weeks ago, I started having trouble swallowing food. I’d have to swallow foods 2-3 times, and sometimes it feels like food is still on my tongue after I get it down but nothing is there. I also find it harder to chew a bunch of small items at once—a bite of Mac and cheese for example just seems harder to get to the back of my mouth, if that makes sense, and swallow it. I can still drink fluids. I don’t have any speech issues but I have felt a pressure in my chest and a swollen lump feeling in my throat that made it feel like I wasn’t able to speak as loudly yesterday. Every once in a while I think I sound slightly hoarse or like the end of a word sounds a little squeaky if that makes sense? I also have that feeling of food stuck in my throat even after drinking water. I’ve also had moments when I’m not eating or drinking where it suddenly feels hard to swallow and I can’t swallow for a second. Just very scary. I’m very worried this is my first sign of weakness. I honestly now feel worried to eat.
and now, my hands and fingers are having a lot of pain/cramping when I go to do just about anything. Holding a mug yesterday or my phone or trying to type a text felt painful sometimes and I’d have to stop and rub my hand or shake it out. I had read pain isn’t normally connected to ALS but then I read a story where a woman said her first symptom was her hand cramping when trying to write out xmas cards and she couldn’t hold the pen and I’m very worried now.
i have also been getting these cramps in my calves or thighs when just walking about my house.
All my bloodwork has been done and I’m not low or high in any nutrient. I am taking extra magnesium at suggesting of neuro but it hasn’t touched the twitches and I have them almost constantly somewhere in my body.
I have a neuro who I’m reaching out to, but I also just am hoping for some reassurance until I hear back from him…
also… I was first in line to get the Covid vaccine. I received Pfizer end of April/beginning of May. These symptoms started in August…
many thanks for your time, care, and understanding.
I did see a neurologist about two weeks ago and my initial exam was good—good strength and reflexes.
but then soon after that appointment, about two weeks ago, I started having trouble swallowing food. I’d have to swallow foods 2-3 times, and sometimes it feels like food is still on my tongue after I get it down but nothing is there. I also find it harder to chew a bunch of small items at once—a bite of Mac and cheese for example just seems harder to get to the back of my mouth, if that makes sense, and swallow it. I can still drink fluids. I don’t have any speech issues but I have felt a pressure in my chest and a swollen lump feeling in my throat that made it feel like I wasn’t able to speak as loudly yesterday. Every once in a while I think I sound slightly hoarse or like the end of a word sounds a little squeaky if that makes sense? I also have that feeling of food stuck in my throat even after drinking water. I’ve also had moments when I’m not eating or drinking where it suddenly feels hard to swallow and I can’t swallow for a second. Just very scary. I’m very worried this is my first sign of weakness. I honestly now feel worried to eat.
and now, my hands and fingers are having a lot of pain/cramping when I go to do just about anything. Holding a mug yesterday or my phone or trying to type a text felt painful sometimes and I’d have to stop and rub my hand or shake it out. I had read pain isn’t normally connected to ALS but then I read a story where a woman said her first symptom was her hand cramping when trying to write out xmas cards and she couldn’t hold the pen and I’m very worried now.
i have also been getting these cramps in my calves or thighs when just walking about my house.
All my bloodwork has been done and I’m not low or high in any nutrient. I am taking extra magnesium at suggesting of neuro but it hasn’t touched the twitches and I have them almost constantly somewhere in my body.
I have a neuro who I’m reaching out to, but I also just am hoping for some reassurance until I hear back from him…
also… I was first in line to get the Covid vaccine. I received Pfizer end of April/beginning of May. These symptoms started in August…
many thanks for your time, care, and understanding.