kss1130
New member
- Joined
- Jul 11, 2022
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- NC
Good morning, I have been reading threads on this forum for weeks now because I’ve been worried sick my symptoms are ALS. I have tried to resist posting, but I’m at my breaking point and thought I would give it a shot to get your opinions. I appreciate you all taking the time to respond, my thoughts are with all of you that have this disease, or are taking care of something that does. I have read the before you post, and still am very concerned. Here is what I have going on:
I was throwing the ball with my 5 year old son in the yard a few weeks ago when I noticed I kept throwing the ball really low or really high. Something just felt off, throwing all over the place. (I played softball for years so I have always been able to throw). I also am a hypochondriac about my health (major health anxiety) I must add. So I came inside and started googling, while using my phone I noticed my thumb felt very weak and shaky on the same hand I throw with (right). ALS popped up and I had panic attacks every day for 2 weeks worrying that this is what I have.
I went to my primary care and had blood work done, the only thing off was low platelets, which are now up to a normal level. I had a brain and upper spine MRI which all came back normal. I am waiting to see a neurologist (5 more weeks). The past few weeks I have experienced body twitches all over- really bad in both feet, in the arches.
The twitching is worse when I’m at rest. I work at a computer 8 hours a day, and have done that for 15 years. I have also lost about 9 lbs..(132, now weighing 123). My right hand feels very weak, but I can still do my day to day activities. I keep thinking back now to the past few months leading up to this. I have been lifting up my 2 year old daughter holding my right hand different. I noticed I always hold my thumb clinched under the rest of my fingers. I just use the right hand different. Not necessarily weak, but using it different. I have always experienced charley horses in my calves and feet, this summer I got a bad one in my left rib…
Does anyone have any insight on this? Could this be the start of ALS? I am hoping to get an EMG when I see the neurologist. The waiting game is so hard!
Thank you in advance.
I was throwing the ball with my 5 year old son in the yard a few weeks ago when I noticed I kept throwing the ball really low or really high. Something just felt off, throwing all over the place. (I played softball for years so I have always been able to throw). I also am a hypochondriac about my health (major health anxiety) I must add. So I came inside and started googling, while using my phone I noticed my thumb felt very weak and shaky on the same hand I throw with (right). ALS popped up and I had panic attacks every day for 2 weeks worrying that this is what I have.
I went to my primary care and had blood work done, the only thing off was low platelets, which are now up to a normal level. I had a brain and upper spine MRI which all came back normal. I am waiting to see a neurologist (5 more weeks). The past few weeks I have experienced body twitches all over- really bad in both feet, in the arches.
The twitching is worse when I’m at rest. I work at a computer 8 hours a day, and have done that for 15 years. I have also lost about 9 lbs..(132, now weighing 123). My right hand feels very weak, but I can still do my day to day activities. I keep thinking back now to the past few months leading up to this. I have been lifting up my 2 year old daughter holding my right hand different. I noticed I always hold my thumb clinched under the rest of my fingers. I just use the right hand different. Not necessarily weak, but using it different. I have always experienced charley horses in my calves and feet, this summer I got a bad one in my left rib…
Does anyone have any insight on this? Could this be the start of ALS? I am hoping to get an EMG when I see the neurologist. The waiting game is so hard!
Thank you in advance.
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