anxi_12
New member
- Joined
- Nov 18, 2022
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- TR
Hello everyone,
I have been having fasciculations on and off for 4 months. Some days more some days kese. I have had neurologist appointments 4 times in 2 week with 2 different neurologists. The first one made clinical exams and blood test. Prescribed me with Magnesium and Folic Acid. I wanted a second opinion and went to an alternative, in the first appointment, last week, she has just done clinical exams, said nerves are perfect and wanted me to use Alprazolam. After just a day, I have visited her again with weak knee on left leg and burning tongue tip, she told me that we can do an EMG/NCS and MRI if I want. I wanted to. EMG was clean for both sides, both upper limbs and lower limbs. MRI was clean as well.
After that I have started having issue with my tongue, especially at night, while sleeping I have some tongue paralysis. I was not able to move my tongue once for couple of seconds. I have also been clenching jaws, biting tongue etc. I am also having some dysphagia (I have had it before several times due to reflux but still worried).
I have been constantly checking my tongue, hands, feet for atrophies. I see some dents and lines in skin. I take pictures and try to compare my old pictures. I realize how I do not have pictures of my hands and tongue (well…) and how I did not pay attention to my body before.
Yesterday I had zero tongue problem. But today I have had a very bad tongue (also some dysphagia and speech problem) in the morning and some weakness on left leg. I have registered an online Meeting with my neurologist. I told her about these tongue symptopms. She said we have done the tests in body and clinical exams. She said my speech is normal and that I am not thinking clearly and no need further confirmation. She advised me to see a psychiatrist and do not come back to neurology clinic again.
Psychiatrist prescribed me with SSRI and Hydroxyzine due to health anxiety.
After reading things about not having the right EMG (not on bulbar only in limbs), doing EMG early etc. I am still having second thoughts and get triggered by finding some weird thing on my foot (I think I am seeing an atrophy in my left foot…).
I wanted to share my story with you and I would like to hear if someone had good results with some anti-depressants after anxiety and doing fine right now. Maybe it would be better if I have never read these stories.
I have been having fasciculations on and off for 4 months. Some days more some days kese. I have had neurologist appointments 4 times in 2 week with 2 different neurologists. The first one made clinical exams and blood test. Prescribed me with Magnesium and Folic Acid. I wanted a second opinion and went to an alternative, in the first appointment, last week, she has just done clinical exams, said nerves are perfect and wanted me to use Alprazolam. After just a day, I have visited her again with weak knee on left leg and burning tongue tip, she told me that we can do an EMG/NCS and MRI if I want. I wanted to. EMG was clean for both sides, both upper limbs and lower limbs. MRI was clean as well.
After that I have started having issue with my tongue, especially at night, while sleeping I have some tongue paralysis. I was not able to move my tongue once for couple of seconds. I have also been clenching jaws, biting tongue etc. I am also having some dysphagia (I have had it before several times due to reflux but still worried).
I have been constantly checking my tongue, hands, feet for atrophies. I see some dents and lines in skin. I take pictures and try to compare my old pictures. I realize how I do not have pictures of my hands and tongue (well…) and how I did not pay attention to my body before.
Yesterday I had zero tongue problem. But today I have had a very bad tongue (also some dysphagia and speech problem) in the morning and some weakness on left leg. I have registered an online Meeting with my neurologist. I told her about these tongue symptopms. She said we have done the tests in body and clinical exams. She said my speech is normal and that I am not thinking clearly and no need further confirmation. She advised me to see a psychiatrist and do not come back to neurology clinic again.
Psychiatrist prescribed me with SSRI and Hydroxyzine due to health anxiety.
After reading things about not having the right EMG (not on bulbar only in limbs), doing EMG early etc. I am still having second thoughts and get triggered by finding some weird thing on my foot (I think I am seeing an atrophy in my left foot…).
I wanted to share my story with you and I would like to hear if someone had good results with some anti-depressants after anxiety and doing fine right now. Maybe it would be better if I have never read these stories.
