31yrs old, good shape, dont smoke or drink and workout often.
Hello- I posted once before last week but really only got one response (probably because my post was to long). I promise I am not wasting anyone’s time; I just really need some answers.
I have had issues for 2.5 months. Started with feeling of extreme fatigue and painful stiffness in my back and neck. A co-worker noticed that I also had tremors in right hand (I passed it off as stress). Around week 4 I started getting weird feeling in my throat (like spasms or twitching in my throat and like something might be stuck in). Same time I began having neck pain in the ligaments and muscles in the sides of my neck. A few days later I started feeling strained to talk. Voice sounds horse and strained. I wake up sometimes and feel like airway is tight and once I cough up the mucus I am OK. I persistently cough to keep mucus out of my throat.
Week 7 I woke up one night and was having full body muscle twitching...legs, hands, arms, torso, face, throat, everywhere (very scary). This has continued. Twitching is always there, day and night, but is much worse at night. It even feels like it inside my chest cavity and throat. I did not find out or research the symptoms to ALS until after the twitching began so this is not in my head.
I have been to the doctor (GP) about 10 times and have had a ton of tests done (blood, CT of head, endoscopy to look for acid reflux) all coming back normal. I am going to go to a neurologist but not for almost a month.
Does this sound like ALS and the way it progresses? Does this sound like Bulbar Onset? If you have experience with this disease, please give my some input.
Should I go to a Nero, ALS specialist, or some other type of specialist?
My wife and I are getting very worried, should we be? Thanks-You for taking the time to respond!
CB in Ohio
Hello- I posted once before last week but really only got one response (probably because my post was to long). I promise I am not wasting anyone’s time; I just really need some answers.
I have had issues for 2.5 months. Started with feeling of extreme fatigue and painful stiffness in my back and neck. A co-worker noticed that I also had tremors in right hand (I passed it off as stress). Around week 4 I started getting weird feeling in my throat (like spasms or twitching in my throat and like something might be stuck in). Same time I began having neck pain in the ligaments and muscles in the sides of my neck. A few days later I started feeling strained to talk. Voice sounds horse and strained. I wake up sometimes and feel like airway is tight and once I cough up the mucus I am OK. I persistently cough to keep mucus out of my throat.
Week 7 I woke up one night and was having full body muscle twitching...legs, hands, arms, torso, face, throat, everywhere (very scary). This has continued. Twitching is always there, day and night, but is much worse at night. It even feels like it inside my chest cavity and throat. I did not find out or research the symptoms to ALS until after the twitching began so this is not in my head.
I have been to the doctor (GP) about 10 times and have had a ton of tests done (blood, CT of head, endoscopy to look for acid reflux) all coming back normal. I am going to go to a neurologist but not for almost a month.
Does this sound like ALS and the way it progresses? Does this sound like Bulbar Onset? If you have experience with this disease, please give my some input.
Should I go to a Nero, ALS specialist, or some other type of specialist?
My wife and I are getting very worried, should we be? Thanks-You for taking the time to respond!
CB in Ohio