31 yo Male. Scared

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BallCoach589

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First post after being an active reader since
September 20. God bless all of you looking for and offering help.

31y/o male with active lifestyle as a college football coach. 6’3 190 (now down to 170) No family history of neuro diseases or autoimmune diseases


Symptoms began 7/20 with tingling and numbness in left leg including fibrillations up and down the leg.

Lower back pain started about a month later 8/20 and has been on and off ever since.

Left leg atrophy became noticeable 1/21. Came with hip and gluteal pain and stiffness. Atrophy is now noticeable to even the most common eye especially in hip and glute.

CK levels were 640 in February and Vitamin D was low, 17. Had positive RF, then a negative a week later. Lyme and thyroid tests came back okay.

EMG was done 3/10/21 and was told only abnormality was in tibialis anterior. Lumbrosacral radiculopathy was what I was told by neuro who administered the test. CK levels were checked again and now 310.

MRI of C spine, L spine and brain are attached. Multiple bulging discs, retrolisthesis in spine. Anomaly and FLAIR signals in brain and borderline Chiari Malformation.

Original neuro recommended 2nd opinion because he doesn’t know what’s wrong.

I now feel weakness in my left arm to go with severe atrophy in left leg. I feel like I’m losing dexterity and strength in hands. It has become much harder to stand on L toes, heels and squat down. Loss of dexterity and flexion in L ankle. However, most concerning issue is that fibrillations have moved to right leg, the same feelings I got before atrophy began. Trying to stay sane and keep anxiety down, but I feel like I’m losing control.

2nd opinion starts tomorrow with new neuro. Thoughts?
 

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lgelb

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The report suggests that differentials include vasculopathies and demyelinating diseases such as MS. Neither relates to ALS, of course. Clearly, you also have spine issues as well that might benefit from PT as a first line therapy.

Let us know what the new neuro suggests, but I don't see any reason to worry about ALS.

Best,
Laurie
 

BallCoach589

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Thanks Laurie.
The first neuro told me that nothing on any of the MRI’s can explain the atrophy and twitching. Hoping for good news!
 
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