Molly1940
New member
- Joined
- Mar 2, 2015
- Messages
- 6
- Reason
- Learn about ALS
- Country
- US
- State
- Maryland
- City
- Baltimore
Hello everyone. I should start off by saying what a wonderful support group this seems like. It is truly great to see people from around the world supporting one another in the fight against this terrible disease. I am a 31 year old female with widespread fassiculations that began in November 2014. I also have significant cramping that comes and goes in my fingers, thighs, and feet. I have what I feel to be weakness or a very heavy feeling in my arms. All bloodwork has been fine- lyme, vitamin levels, thyroid, ect. MRI is clear.
I had a an EMG that is clear. Neuro said I had a normal exam. The neuro at the ALS clinic I went to (referred to by primary neurologist) said no ALS at this time. I should also add that I have had tingling sensations in my face and extremities since December 2013.
The doctor said Cramp Fasiculation Syndrome was what he was leaning to as far as a diagnosis but took several skin biopsies which I am waiting for the result on. I asked if Cramp Fasiculation Syndrome was a precursor for ALS and he said no. I guess I am now questioning what “no ALS at this time” means. I have found some conflicting information on the internet as to whether CFS can be an early sign of ALS.
I would love any insight. I have a four month year old (completely normal pregnancy) and I am worried and scared. I have had a clean bill of help up until Dec 2013.
I am sending prayers to all that have this horrible disease or have symptoms that resemble it and do not have a diagnosis.
Prayers and hugs. Thanks in advance for your input.
I had a an EMG that is clear. Neuro said I had a normal exam. The neuro at the ALS clinic I went to (referred to by primary neurologist) said no ALS at this time. I should also add that I have had tingling sensations in my face and extremities since December 2013.
The doctor said Cramp Fasiculation Syndrome was what he was leaning to as far as a diagnosis but took several skin biopsies which I am waiting for the result on. I asked if Cramp Fasiculation Syndrome was a precursor for ALS and he said no. I guess I am now questioning what “no ALS at this time” means. I have found some conflicting information on the internet as to whether CFS can be an early sign of ALS.
I would love any insight. I have a four month year old (completely normal pregnancy) and I am worried and scared. I have had a clean bill of help up until Dec 2013.
I am sending prayers to all that have this horrible disease or have symptoms that resemble it and do not have a diagnosis.
Prayers and hugs. Thanks in advance for your input.