Just J
Distinguished member
- Joined
- Oct 30, 2007
- Messages
- 300
- Reason
- DX UMND/PLS
- Diagnosis
- 01/2010
- Country
- US
- State
- MD
- City
- Havre de Grace
I don't understand the EMG. I started having trouble with right arm weakness over a year ago and trouble with stairs about 9 months ago. My left arm went weak over 2 months ago and thats when I noticed the twitching followed by cramping. Neuro #1 checked me out - brisk reflexes, spreading weakness. Lots of blood work and an EMG that were all normal left me with a referral to an als clinic 3 weeks later. EMG and more blood work from Neuro #2 left nothing to diagnos. I'm losing weight which concerns me because I'm thin to begin with. I have major trouble getting out of bed, in and out of cars (very tight muscles in lower back). My gait has changed and I walk like my sister that has had MS for 20 years. Anyway, ALS clinic neuro says come back in 3 months and we'll have another look-see. How come my EMG reads normal? My guess is, the neuro wants to see me again in 3 months to see if EMG changes. At this point, there must be a plethora of things they've ruled out (but not telling me) with the MRI and blood work already done by 2 neuros. Nobody wants a diagnosed of ALS but shucky d a r n, tell me something!
Zaphoon, I undersand your frustration. We are in the same place....I strongly suggest that you get copies of your medical records from every doctor you have seen. They are a wealth of information and often include things the doctor just did not feel necessary to mention. I am going to make a post about this under "is this ALS?" as my husband is still awaiting diagnosed and we rcvd this week additional records that we requested and learned a few things.