Yvme
Active member
- Joined
- Jul 18, 2014
- Messages
- 30
- Reason
- Learn about ALS
- Country
- CRO
- State
- Croatia
- City
- Zagreb
Hello dear all! I just want to make an update. It has been a bit more than 3 years since my symptoms started. From the begining i have body widespread twitching, i have weird sensations on moj tongue, it started to apear assymetryc few months ater twitching happend. All my problems from day one are on one side-my dominant side -right calf muscle, small muscles of right foot, thenar muscle in right hand. My reflexes are all normal -bilaterally. I have been to numerous neuromuscular specialists that have done emg on both my hands and legs (4 EMGs till today) NCS are always appearing great, EMGs have found some "unconserning" findings only in my feet muscles :extensor digitorum brevis dex at sin and flexor hallucis brevis dex at sin both have slightly reduced recruitment and big muaps (9 mV) that had not significantly changed those 3 years appart and are to my surprise billatheral from first year till now (yesterday I had new EMG and nothing has changed) and she said that it points out to radiculopathy at L5-S1. She left the needle in muscles for a minute and norhing appearef when muscles were still. neurologist did see my calf muscle and she mesured the difference between right and left about 0.50 cm...she saw other assymetric changes and didnt have a comment on it, since I didnt loose strenght in any muscles mentioned.
What do you all think? The twitching is still making me nuts, and Im still scared that it could be MND...do you think that i could do aything else to try and find the cause of my problems?
P.S. Sorry for my spelling! Its 3 AM in my country!
I am 29 y old female, planning pregnancy and scared it could enhance my symptoms
What do you all think? The twitching is still making me nuts, and Im still scared that it could be MND...do you think that i could do aything else to try and find the cause of my problems?
P.S. Sorry for my spelling! Its 3 AM in my country!
I am 29 y old female, planning pregnancy and scared it could enhance my symptoms