Jlynn
Distinguished member
- Joined
- Mar 16, 2016
- Messages
- 415
- Reason
- Lost a loved one
- Diagnosis
- 12/2015
- Country
- US
- State
- NH
- City
- Wolfeboro
3 years tomorrow since I lost my brother to ALS and....I still feel deep sadness over missing him...still feel deep sadness when I think about what ALS does to a human being....still wished I’d massaged his deteriorating legs with his favorite lotion every day....still wish I’d known then some of the things I know now when caring for him....so wish I’d been holding his hand when he took his last breath instead of resting outside his door. Theres more “so wishes “. After 3 years I’m still feeling the aftershocks over what we went through together. ALS leaves this lasting effect that is making me wonder if I will ever be able to speak of it without tearing up. I miss him and I hate that he’s missing so much. Watching his two youngest grow up (they are now 14 and 17) and two new grand babies (his first). The tenacles of ALS seem to reach far and wide. To help myself push through I have raised money for ALS by growing beautiful zinnias and putting them out at the end of my drive for donations. I plan on a $1000 donation for doing something I love to help get rid of something I hate. I just needed to vent to the only people I feel totally get it. Thanks for listening!