Miamicanes
New member
- Joined
- Apr 25, 2023
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
Hello, I am a 29 yr male and in late Jan starting having troubling symptoms. Here is a timeline.
Late Jan - action tremor in hand, left pinky felt odd to move and stiff. Middle finger and ring finger felt somewhat numb but no weakness to report.
Feb - stiffness in left hand continued and some discomfort on ring finger as well. Mostly noticeable when typing or doing sports. Noticed that I could not engage with that finger like before. It’s a pinky so usually not as engaged as other fingers anyways but still hard to tell.
Mar - starting to feel weakness or slowness in both legs. My left leg would feel very sore and heavy when engaged. It would cause occasional pain in the cold or when humidity would strike. Feet also feel numb at times. Ran a 5k with a family member the day I really noticed my left leg weakness and knee pain and have yet to workout since. Haven’t fallen or tripped even though I’m certainly more conscious of my gait and stride. Leg easily tires. Full body twitching started night before the run and has since never left, more prominent in legs now but still can happen or does happen everywhere else.
April - now my right pinky joined the party and is having similar issues to my left. Issues with fine motor movements and stiffness as well. Went to a neurologist and was sent for EMg/ncs and I have attached results.
Full symptoms at this moment:
Both pinkies have issues with fine motor skills, stiffness
Left leg stiffness and soreness
Weakness even though it hasn’t been clinically observed with my 2 neuro visits
Body muscle twitches and occasional cramps as well
I’d also like to add. I had a back injury 5 years ago and bulging lumbar discs that caused damage. No surgery done although I’ve been unable to lift weights or do heavy exercise without feeling soreness and stiffness. Recommended to never lift weights again. After my EMG I was sent to get a cervical MRI and I’ve also included those results.
All the neurologist has essentially said is to get my anxiety in order and relax. The EMG and NCS both have findings, although they assured no ALS so no problem. It hasn’t been a long time in symptoms and since my symptoms started with my fingers he only conducted the EMG on my hands, arms and neck.
Much love and respect to all fighting this disease. My ex girlfriends mother passed from it and I witnessed it upfront and I have so much compassion for the ones enduring the battle, patients and family members alike.
Thanks for any guidance or relatable stories I can find for my current situation.
Late Jan - action tremor in hand, left pinky felt odd to move and stiff. Middle finger and ring finger felt somewhat numb but no weakness to report.
Feb - stiffness in left hand continued and some discomfort on ring finger as well. Mostly noticeable when typing or doing sports. Noticed that I could not engage with that finger like before. It’s a pinky so usually not as engaged as other fingers anyways but still hard to tell.
Mar - starting to feel weakness or slowness in both legs. My left leg would feel very sore and heavy when engaged. It would cause occasional pain in the cold or when humidity would strike. Feet also feel numb at times. Ran a 5k with a family member the day I really noticed my left leg weakness and knee pain and have yet to workout since. Haven’t fallen or tripped even though I’m certainly more conscious of my gait and stride. Leg easily tires. Full body twitching started night before the run and has since never left, more prominent in legs now but still can happen or does happen everywhere else.
April - now my right pinky joined the party and is having similar issues to my left. Issues with fine motor movements and stiffness as well. Went to a neurologist and was sent for EMg/ncs and I have attached results.
Full symptoms at this moment:
Both pinkies have issues with fine motor skills, stiffness
Left leg stiffness and soreness
Weakness even though it hasn’t been clinically observed with my 2 neuro visits
Body muscle twitches and occasional cramps as well
I’d also like to add. I had a back injury 5 years ago and bulging lumbar discs that caused damage. No surgery done although I’ve been unable to lift weights or do heavy exercise without feeling soreness and stiffness. Recommended to never lift weights again. After my EMG I was sent to get a cervical MRI and I’ve also included those results.
All the neurologist has essentially said is to get my anxiety in order and relax. The EMG and NCS both have findings, although they assured no ALS so no problem. It hasn’t been a long time in symptoms and since my symptoms started with my fingers he only conducted the EMG on my hands, arms and neck.
Much love and respect to all fighting this disease. My ex girlfriends mother passed from it and I witnessed it upfront and I have so much compassion for the ones enduring the battle, patients and family members alike.
Thanks for any guidance or relatable stories I can find for my current situation.