Thelights
Active member
- Joined
- Jun 10, 2015
- Messages
- 41
- Reason
- Learn about ALS
- Country
- AUS
- State
- QLD
- City
- Brisbane
Hello All
I'm 25 years old
Was fit and muscularly toned in feb
ate reasonably well
don't smoke , rarely drink.
I have read the first post but would still like your input please.
For the past four months I have had various symptoms and little luck with the docs.
In the beginning (i think it was mid/late feb) I was taking a walk with my GF and noticed my hands felt weird/stiff/weak
and my top lip was a bit "off" as well.
This was followed by bouts of fatigue.
Another time both my Gf and I took a walk and I she interlocked her fingers in mine and I had a sharp shooting pain in my fingers even though she wasn't pressing hard.
Around that time I became aware that I had O,C,D and clearly had anxiety with it.
I went to the doctors who ran blood checks specifically on my thyroid (clinically subacute thyroiditis) however the levels are almost always within a normal range.
The fatigue persisted and the doc kept telling me We'll do another blood check soon and the next time we'll do another blood check soon.
During one of the blood tests I found out that I had herpes 1 aka the cold sore virus. my gf went to the city to work that weekend and i was a bit freaked and told her over the phone. That night I went over to my friends house and noticed the grip in my left hand was slightly off I also had numbness around my left pectoral and down my left arm. I was concerned it was heart related and so I called a nurse hotline. She told me if the symptoms persist/get worse I should go to the nearest hospital.
I was meant to sleep over my friends house that night, I decided to go home instead as I was feeling iffy.
for a week or two after that I still had the odd hands and concerns after I tried self diagnosing over the internet
(a bloody stupid thing to do when one has o.c.d i know)
Symptoms of fatigue persisted. I went to my GFs parents for a short get away and to meet them for the first time. My hands were still off.
during all this time I had laid off the gym because of the fatigue.
a week after the get away i felt mentally better
So I decided to go to the gym
The same day I got pain in the base of my thumbs and that really freaked me out, I went to my gf's that night and I couldn't swallow or chew properly (definitely anxiety related) I was even more aware of my hand issues. I went to bed early and my Gf said i was pissing sweat that night.
the next morning I thought I would have recovered from these symptoms .. no such luck
3 days later I went salsa dancing and i put weight on my right leg and it started spazzing out , the next night it was numb and twitching. a few days later i tried typing on the keyboard and had aches and pains in the hands trying to type.
gradually my grip has felt worse. I immediately started panicking that I had MND/ALS
I wasn't satisfied with my docs service and so I went to my mothers doc.. Typically I had a panic attack in the docs office who proceeded to shove anti anxiety meds at me . I wasn't happy with this as I felt as though he wasn't listening to me .
I told my mother who wasn't very impressed with what her doctor came up with. In some ways i can't blame him. However I wish he had taken me more seriously.
Doc3 By now my fatigue is worse (could lift 32 kg bicep curl struggle to lift 12 kg) and due to the worry of possible mnd/als i'm not eating as well as i should be (im 68 kg should be 72). This doctor wanted to help me more naturally. He told me that I had low vit D and a stomache bug called blastocystis. He slammed me on antibiotics and vit d supplements which I took religiously.
during this time I am having issues with my mouth the best way i can describe it is tired tounge , tired to chew, (that tingly sharp feeling you get when you suck a lemon or are nasueous *more notcieable on my left side but on the right aswell8) my left arm is fairly numb weak tingling and the weirdness persists in my right hand. Fasiculations aches and pains had started a bit before the consultation with the third doc. The doc wanted me to clean up my diet i.e. no wheat dairy or sugar. This made it even harder to try and feed myself. It feels odd trying to hold knife and fork , holding cups and mugs seems harder , hands seem worse in the morning don't even feel like grabbing gf's boobs my hands are that bad.holding a small book open with thumbs feels tiring.
unfortunately the third doc was only locuming and left 2 weeks ago.
currently i am weaker in the legs harder to carry groceries neck movement feels slower . I will be looking down at counter in work and look up to see customer and my head will jolt up as opposed to a fluid movement. 4th doc has prescribed mirtazapine which has helped with the anxiety, However ! I am still having issues chewing is still weak , im sleeping more and after i've slept i still feel tired . I get tired fairly quickly . If i eat a steak or talk alot my mouth gets tired and I feel as though its harder to speak/chew/ move tongue. swallowing has been a bit odd as well. I've lost hours at work as the bosses can see im not myself. My rents and gf are going of their heads due to my worrying. Im calmer after meds now but im more frustrated than anything.
4th doc had said there is little more that she can do and has fixed me up with a consultation with a rhumatologist (im sceptical as my bloods says no rhumatic athritis) will take 6 weeks. 4th doc was concerned with me taking 6 1000 iu's of vit d and said at my age i should only be taking 1 or 2 and just jumping in sun ---- then she statrs looking up symptoms for vit d toxicity on google in front of me ... WTF my symptoms started before i even knew i was vit d deficient . --- adding further to my frustration-- 4th Doc thinks it's a viral issue but can't say for sure hence rhumatologist
to summarize
Weak chewing
Weak tongue
Weak hands
Pain in base of thumb feels like RSI (predominant in the left thumb)
pain in fingers
Numbness and tingling down arm occasionally
Fasciculations all over (more concerned about fasciculation in base of thumb)
pain in toes
moving arm in circular motion e.g. washing round plate tweaks shoulders grinding click
standing for two hours puts pressure on right leg otherwise weak legs
head jerks/feels like a tremor
forearm biceps aches and pain
general shakiness
fogginess
aches around throat area
clicks and cracks around wrist and ankles
feel agitated when using hands like your pushing that last rep but without the strain
tender muscles
I absolutely agree this is a bloody long post
but this is beginning to frustrate me big time.
it's affecting my work and my life (was working 38 hours- only getting 9 a week now : (
).
The problem I have found with O.C.D (I started seeing a psychologist early feb) is that once you mention it to a doc, their eyes glaze over and they don't take you as seriously any more.
I'm like the boy that cried wolf , but alas I never cried wolf
I reiterate that my anxiety is lower now and I am now more concerned that issues are still persisting which leads me to believe it's not just anxiety. Oh I am also eating better regardless of the weak mouth.
Cheers
TheLights
I'm 25 years old
Was fit and muscularly toned in feb
ate reasonably well
don't smoke , rarely drink.
I have read the first post but would still like your input please.
For the past four months I have had various symptoms and little luck with the docs.
In the beginning (i think it was mid/late feb) I was taking a walk with my GF and noticed my hands felt weird/stiff/weak
and my top lip was a bit "off" as well.
This was followed by bouts of fatigue.
Another time both my Gf and I took a walk and I she interlocked her fingers in mine and I had a sharp shooting pain in my fingers even though she wasn't pressing hard.
Around that time I became aware that I had O,C,D and clearly had anxiety with it.
I went to the doctors who ran blood checks specifically on my thyroid (clinically subacute thyroiditis) however the levels are almost always within a normal range.
The fatigue persisted and the doc kept telling me We'll do another blood check soon and the next time we'll do another blood check soon.
During one of the blood tests I found out that I had herpes 1 aka the cold sore virus. my gf went to the city to work that weekend and i was a bit freaked and told her over the phone. That night I went over to my friends house and noticed the grip in my left hand was slightly off I also had numbness around my left pectoral and down my left arm. I was concerned it was heart related and so I called a nurse hotline. She told me if the symptoms persist/get worse I should go to the nearest hospital.
I was meant to sleep over my friends house that night, I decided to go home instead as I was feeling iffy.
for a week or two after that I still had the odd hands and concerns after I tried self diagnosing over the internet
(a bloody stupid thing to do when one has o.c.d i know)
Symptoms of fatigue persisted. I went to my GFs parents for a short get away and to meet them for the first time. My hands were still off.
during all this time I had laid off the gym because of the fatigue.
a week after the get away i felt mentally better
So I decided to go to the gym
The same day I got pain in the base of my thumbs and that really freaked me out, I went to my gf's that night and I couldn't swallow or chew properly (definitely anxiety related) I was even more aware of my hand issues. I went to bed early and my Gf said i was pissing sweat that night.
the next morning I thought I would have recovered from these symptoms .. no such luck
3 days later I went salsa dancing and i put weight on my right leg and it started spazzing out , the next night it was numb and twitching. a few days later i tried typing on the keyboard and had aches and pains in the hands trying to type.
gradually my grip has felt worse. I immediately started panicking that I had MND/ALS
I wasn't satisfied with my docs service and so I went to my mothers doc.. Typically I had a panic attack in the docs office who proceeded to shove anti anxiety meds at me . I wasn't happy with this as I felt as though he wasn't listening to me .
I told my mother who wasn't very impressed with what her doctor came up with. In some ways i can't blame him. However I wish he had taken me more seriously.
Doc3 By now my fatigue is worse (could lift 32 kg bicep curl struggle to lift 12 kg) and due to the worry of possible mnd/als i'm not eating as well as i should be (im 68 kg should be 72). This doctor wanted to help me more naturally. He told me that I had low vit D and a stomache bug called blastocystis. He slammed me on antibiotics and vit d supplements which I took religiously.
during this time I am having issues with my mouth the best way i can describe it is tired tounge , tired to chew, (that tingly sharp feeling you get when you suck a lemon or are nasueous *more notcieable on my left side but on the right aswell8) my left arm is fairly numb weak tingling and the weirdness persists in my right hand. Fasiculations aches and pains had started a bit before the consultation with the third doc. The doc wanted me to clean up my diet i.e. no wheat dairy or sugar. This made it even harder to try and feed myself. It feels odd trying to hold knife and fork , holding cups and mugs seems harder , hands seem worse in the morning don't even feel like grabbing gf's boobs my hands are that bad.holding a small book open with thumbs feels tiring.
unfortunately the third doc was only locuming and left 2 weeks ago.
currently i am weaker in the legs harder to carry groceries neck movement feels slower . I will be looking down at counter in work and look up to see customer and my head will jolt up as opposed to a fluid movement. 4th doc has prescribed mirtazapine which has helped with the anxiety, However ! I am still having issues chewing is still weak , im sleeping more and after i've slept i still feel tired . I get tired fairly quickly . If i eat a steak or talk alot my mouth gets tired and I feel as though its harder to speak/chew/ move tongue. swallowing has been a bit odd as well. I've lost hours at work as the bosses can see im not myself. My rents and gf are going of their heads due to my worrying. Im calmer after meds now but im more frustrated than anything.
4th doc had said there is little more that she can do and has fixed me up with a consultation with a rhumatologist (im sceptical as my bloods says no rhumatic athritis) will take 6 weeks. 4th doc was concerned with me taking 6 1000 iu's of vit d and said at my age i should only be taking 1 or 2 and just jumping in sun ---- then she statrs looking up symptoms for vit d toxicity on google in front of me ... WTF my symptoms started before i even knew i was vit d deficient . --- adding further to my frustration-- 4th Doc thinks it's a viral issue but can't say for sure hence rhumatologist
to summarize
Weak chewing
Weak tongue
Weak hands
Pain in base of thumb feels like RSI (predominant in the left thumb)
pain in fingers
Numbness and tingling down arm occasionally
Fasciculations all over (more concerned about fasciculation in base of thumb)
pain in toes
moving arm in circular motion e.g. washing round plate tweaks shoulders grinding click
standing for two hours puts pressure on right leg otherwise weak legs
head jerks/feels like a tremor
forearm biceps aches and pain
general shakiness
fogginess
aches around throat area
clicks and cracks around wrist and ankles
feel agitated when using hands like your pushing that last rep but without the strain
tender muscles
I absolutely agree this is a bloody long post
but this is beginning to frustrate me big time.
it's affecting my work and my life (was working 38 hours- only getting 9 a week now : (
).
The problem I have found with O.C.D (I started seeing a psychologist early feb) is that once you mention it to a doc, their eyes glaze over and they don't take you as seriously any more.
I'm like the boy that cried wolf , but alas I never cried wolf
I reiterate that my anxiety is lower now and I am now more concerned that issues are still persisting which leads me to believe it's not just anxiety. Oh I am also eating better regardless of the weak mouth.
Cheers
TheLights