2nd EMG, still no diagnosed

[vivi]

Hello!

Almost 3 month has passed since the 1st test. Now we flew to Brisbane again, for the 2nd time to see the specialist for another EMG. He was supposed to get a lumbar puncture as well, but as you guys explained it's really not fun, so the doctor agreed to wait.

He was in for about 1hr, and 2 other doctors were called in to check him out.

So here are the results: (copying what he wrote on a piece of paper)

EMG showed the right leg is stonger, the left is exacly the same
The problem is with the L5.
possibilities according to the spec.:
compression / not very likely
inflammatory
non-diabetic lumbosacral radiculoplexus neuropathy
and MND still not ruled out

The doctor had a very brief discussion with us, but he wasn't very nice at all, and didn't explain what all this non diabetic lubo..thing means.

he is due for another appointment in 4 months time.

My hubby's general condition is much better, walks much easier than before. - even without the footbrace. And the EMG clearly showed improvment on on leg.
So why can't MND be ruled out?
And why can't they figure it out what's going on?
Anybody can make any sence out of this?

Thank you for your input

vivi

 

[olly]

hi vivi

i have been thinking about you and your hubby.
so sorry to hear you still dont have any answers but it looks like there still could be smething else going on besides mnd.
some improvement is good news,it seems like the physio is working.
as for the results,i really dont have a clue but i am sure someone else may be able to help.
do you know exactly what the emg showed?any possible lmn involvement?
you are both in my thoughts and prayers

 

[vivi]

Hi olly!
Thanks for your reply. I don't know what the emg showed exactly, but I will ask this time for the full report. What is "lmn"?
The doctor also said that something with the immune system working against itself which could cause the problem with L5 root nerve. It might be something to do with this non diabetic lumbosacral radiculoplexus, but he was explaining it so fast and didn't really understand it. Anyway next month we going to Europe, and we're not gonna worry too much about it. We can worry about it after ;-)