lhagsjr
Distinguished member
- Joined
- Apr 25, 2007
- Messages
- 173
- Country
- US
- State
- PA
- City
- Philadelphia
and just need the DX. I know I have it. This sucks so bad. Im a newlywed. I dont know what to do for my wife. This time last year I got home from my honeymoon without a worry in the world. One year later I sit here with a death sentence. How can this happen at 28(actually symptoms started at 27). I stay as strong as I can for wife, mom, etc because Im "not diagnosed". Im smart enough to know you dont have muscle fasicualations all over your body combined with atrophy and not have ALS or at least a MND. The tongue also looks odd. I cannot figure out 2 things:
1.) Whenever I go to a Drs office the twitching halts.
2.) I had an EMG of the right side of my body in March and it was clean.(5 months into twitching)
What Im going through right now is hell. Horrible symptoms without a DX. So family thinks Im nuts but I feel like crap every minute of everyday. Also saw the lead neuro of the ALS clinic here at the Univeristy of PA who said, NO MND. I have my 2nd EMG at University of PA ALS Clinic on Wednesday. I guess we will see what happens. My question is, what if it is clean? Where do I go from there? Do I ignore the fasiculations and try to build muscle mass back? Im just so lost...
1.) Whenever I go to a Drs office the twitching halts.
2.) I had an EMG of the right side of my body in March and it was clean.(5 months into twitching)
What Im going through right now is hell. Horrible symptoms without a DX. So family thinks Im nuts but I feel like crap every minute of everyday. Also saw the lead neuro of the ALS clinic here at the Univeristy of PA who said, NO MND. I have my 2nd EMG at University of PA ALS Clinic on Wednesday. I guess we will see what happens. My question is, what if it is clean? Where do I go from there? Do I ignore the fasiculations and try to build muscle mass back? Im just so lost...