Jeff Long
Distinguished member
- Joined
- Jul 21, 2011
- Messages
- 254
- Reason
- PALS
- Diagnosis
- 10/2011
- Country
- US
- State
- NC
- City
- Raleigh
Daniel,
Nothing new or original to add, just wanted to say that the folks here, the folks at the Triangle ALSA and the Duke ALS Clinic can offer you the greatest help you'll find anywhere! I was admitted to the club last year and because they are older (25,21,18,14), was able to tell my kids quite bluntly about the diagnosed and the prognosis.
Your babies are probably better served by gentler, slower approach based on your progression and the visible signs of the disease.
FYI, this Sunday the Triangle ALSA is having a meet-and-greet for PALS and CALS. Holler and I can give you the details.
Jeff
Nothing new or original to add, just wanted to say that the folks here, the folks at the Triangle ALSA and the Duke ALS Clinic can offer you the greatest help you'll find anywhere! I was admitted to the club last year and because they are older (25,21,18,14), was able to tell my kids quite bluntly about the diagnosed and the prognosis.
Your babies are probably better served by gentler, slower approach based on your progression and the visible signs of the disease.
FYI, this Sunday the Triangle ALSA is having a meet-and-greet for PALS and CALS. Holler and I can give you the details.
Jeff