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27 yr old with ALS

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Jeff Long

Distinguished member
Joined
Jul 21, 2011
Messages
254
Reason
PALS
Diagnosis
10/2011
Country
US
State
NC
Daniel,
Nothing new or original to add, just wanted to say that the folks here, the folks at the Triangle ALSA and the Duke ALS Clinic can offer you the greatest help you'll find anywhere! I was admitted to the club last year and because they are older (25,21,18,14), was able to tell my kids quite bluntly about the diagnosed and the prognosis.
Your babies are probably better served by gentler, slower approach based on your progression and the visible signs of the disease.
FYI, this Sunday the Triangle ALSA is having a meet-and-greet for PALS and CALS. Holler and I can give you the details.
Jeff
 

notgivnup

Senior member
Joined
Nov 8, 2010
Messages
815
Reason
PALS
Diagnosis
11/2010
Country
OS
State
Darkside of Moon
Daniel, so sorry for your diagnosis and so very young. Welcome to the family, which is what we are here. To help support, encourage and share knowledge, not to mention ranting and raving occationally. We share the journey together as best we can, everyone different yet the same. Wishing you the best and prayers for healing and strenght. {HUG}
 
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