ThatBankDude
New member
- Joined
- Sep 1, 2019
- Messages
- 8
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- US
- State
- OK
Good evening,
I want to start this off by saying that my heartfelt sympathies to those who are battling this monster of a disease. I have a friend of mine who’s mom passed away from her battle with ALS.
I have read the sticky however I was hoping for some more clarification. I want to provide an overview of my life and symptoms to be able to paint a better picture of what my life is like and the “symptoms” that I have been having.
My wife and I have been married for just over 6 years and we have 2.5 year old twin boys and a 5 month old little girl. I started my MBA in August of 2017 and finished in June of this year. I immediately applied for, and was accepted, to a Master of Science in Finance program. My twins have never been great sleepers and continue to wake up once or twice per night (each) and just about every night I end up sleeping on a pallet I make on the floor of our room in an effort to get sleep. I would save I average about 5-6 hours of good sleep per night. About 2 or 3 months ago I noticed that my arms were feeling heavy and wrote it off as stress and lack of sleep. Fast forward, over the past 3 weeks or so I have noticed that I have random, and quick, muscle twitches on my arms, legs and shoulders alongside the heavy limb feelings. They are not long lasting and they last for no more than 5 seconds. My brother is an ER Physician so I have someone to go to however I first went to Dr. Google which immediately pulled up ALS.
I made an appointment with my GP and they did bloodwork in which they did a CBC as well as checked for autoimmune disorders. Everything was perfect except my Vitamin D level was a 26 and they said it was low. I immediately began taking Vitamin D supplements along with magnesium supplements about 1 week ago and the muscle twitches are not alleviated. I have also noticed that I have been more clumsy with my hands in terms of dropping my phone or something else I am holding. My GP has ordered a MRI for September 5th and referred me to see Dr. Brent Beson and Dr. Joshua Kershen at the MDA Clinic in OKC on September 11 (hopefully that day does not give bad juju for me). Here for the past 4-6 days I have noticed a “lump in my throat” feeling as well as the fact that my left calf muscle appears smaller than my right (I know self examining is a no-no). I am still able to chug a bottle of water in 5 seconds, eat what I want and so forth but I feel as though mucus or something is lodged in my throat. Everything I have read has stated that it typically starts with 1 limb if limb onset or choking/slurred speech if bulbar onset however things I have read on Facebook there have been people say they started with this same feeling.
So in summary, I have been having the feeling of heavy arms/legs, muscle twitching widespread, left calf appears smaller than the right, occasional dropping of things and a “lump in the throat” feeling that will not go away.
I want to start this off by saying that my heartfelt sympathies to those who are battling this monster of a disease. I have a friend of mine who’s mom passed away from her battle with ALS.
I have read the sticky however I was hoping for some more clarification. I want to provide an overview of my life and symptoms to be able to paint a better picture of what my life is like and the “symptoms” that I have been having.
My wife and I have been married for just over 6 years and we have 2.5 year old twin boys and a 5 month old little girl. I started my MBA in August of 2017 and finished in June of this year. I immediately applied for, and was accepted, to a Master of Science in Finance program. My twins have never been great sleepers and continue to wake up once or twice per night (each) and just about every night I end up sleeping on a pallet I make on the floor of our room in an effort to get sleep. I would save I average about 5-6 hours of good sleep per night. About 2 or 3 months ago I noticed that my arms were feeling heavy and wrote it off as stress and lack of sleep. Fast forward, over the past 3 weeks or so I have noticed that I have random, and quick, muscle twitches on my arms, legs and shoulders alongside the heavy limb feelings. They are not long lasting and they last for no more than 5 seconds. My brother is an ER Physician so I have someone to go to however I first went to Dr. Google which immediately pulled up ALS.
I made an appointment with my GP and they did bloodwork in which they did a CBC as well as checked for autoimmune disorders. Everything was perfect except my Vitamin D level was a 26 and they said it was low. I immediately began taking Vitamin D supplements along with magnesium supplements about 1 week ago and the muscle twitches are not alleviated. I have also noticed that I have been more clumsy with my hands in terms of dropping my phone or something else I am holding. My GP has ordered a MRI for September 5th and referred me to see Dr. Brent Beson and Dr. Joshua Kershen at the MDA Clinic in OKC on September 11 (hopefully that day does not give bad juju for me). Here for the past 4-6 days I have noticed a “lump in my throat” feeling as well as the fact that my left calf muscle appears smaller than my right (I know self examining is a no-no). I am still able to chug a bottle of water in 5 seconds, eat what I want and so forth but I feel as though mucus or something is lodged in my throat. Everything I have read has stated that it typically starts with 1 limb if limb onset or choking/slurred speech if bulbar onset however things I have read on Facebook there have been people say they started with this same feeling.
So in summary, I have been having the feeling of heavy arms/legs, muscle twitching widespread, left calf appears smaller than the right, occasional dropping of things and a “lump in the throat” feeling that will not go away.