26/m Dirty emg + fasciculations

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zocchi44

New member
Joined
Nov 11, 2020
Messages
2
Reason
Learn about ALS
Diagnosis
00/0000
Country
UK
State
WM
City
Tipton
Hello there,

First of all i would like to introduce myself, My name is Reece and im 26 years old and i'm from the united kingdom

I Have had very strange symptoms for approximately 6 months the most common being extremely fatigued and muscle twitching all over my body. I also know that the chances of me having ALS is extremely low.

I got referred to a neurologist who ordered an emg which sadly came back showing a "mild proximal myopathy"and that adult onset pompe disease should be looked at. i have now been referred to a specialist who deals with this kind of stuff exclusively. My main problem is the twitching throughout my body i have read throughout that myopathy usually doesn't result in fasciculations.

Would anyone who is experienced be kind enough to look into my emg?

Whatever happens i'm glad i have read so much about this truly awful disease and will be supporting charities going forward.

God bless you all
 

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Your emg should have had a conclusion page andwe usually see different columns but it points to myopathy which is a completely different pattern than ALS/MND. EMGs can be abnormal is many different ways and yours is showing something different. An analogy would be a blood test for thyroid. It can be high ( hyperthyroid) normal or low ( hypothyroid). Both hyperthyroidism and hypothyroidism are abnormal states but they are different diseases

it sounds like your doctors are proceeding appropriately. Let them do their job. Good luck
 
Thank you so much for your reply.

This is the conclusion page, i'm just praying its not this awful disease.
 

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Again your emg points away from mnd and they will explore myopathies Good luck
 
There are many mild adult-onset myopathies, some of them falling into the "muscular dystrophy" category. Technology has allowed for more help than ever with any weakness that develops.

All the best.
 
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