26/m Dirty emg + fasciculations

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zocchi44

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Hello there,

First of all i would like to introduce myself, My name is Reece and im 26 years old and i'm from the united kingdom

I Have had very strange symptoms for approximately 6 months the most common being extremely fatigued and muscle twitching all over my body. I also know that the chances of me having ALS is extremely low.

I got referred to a neurologist who ordered an emg which sadly came back showing a "mild proximal myopathy"and that adult onset pompe disease should be looked at. i have now been referred to a specialist who deals with this kind of stuff exclusively. My main problem is the twitching throughout my body i have read throughout that myopathy usually doesn't result in fasciculations.

Would anyone who is experienced be kind enough to look into my emg?

Whatever happens i'm glad i have read so much about this truly awful disease and will be supporting charities going forward.

God bless you all
 

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Nikki J

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Your emg should have had a conclusion page andwe usually see different columns but it points to myopathy which is a completely different pattern than ALS/MND. EMGs can be abnormal is many different ways and yours is showing something different. An analogy would be a blood test for thyroid. It can be high ( hyperthyroid) normal or low ( hypothyroid). Both hyperthyroidism and hypothyroidism are abnormal states but they are different diseases

it sounds like your doctors are proceeding appropriately. Let them do their job. Good luck
 

zocchi44

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Thank you so much for your reply.

This is the conclusion page, i'm just praying its not this awful disease.
 

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Nikki J

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Again your emg points away from mnd and they will explore myopathies Good luck
 

lgelb

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There are many mild adult-onset myopathies, some of them falling into the "muscular dystrophy" category. Technology has allowed for more help than ever with any weakness that develops.

All the best.
 
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