Myron
New member
- Joined
- Jun 25, 2019
- Messages
- 6
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- NL
- State
- ZH
Hello everyone. My name is Myron. I’m 25 years old, living in the Netherlands. I’ve not been feeling well since late february (the 25th to be precise), and i’m very worried/scared by now. I would like to apologize in advance. It’s not my intention to invade your forum. Im just really really scared. Second of all, I apologize for my broken language and the length of my story (its pretty hard to summarize 4 months of misery).
As I said, it all started on the 25th of february. Really out of nowhere. I was laying in my bed that evening, trying to fall asleep. All of a sudden I felt really weird. I started to shiver uncontrollably, got dizzy (light feeling in my head), short of breath and very weak. It was terrifying. Somehow I managed to fall asleep, hoping it would be over the next day. But it wasn’t. And it has been going downwards fast ever since. I can’t remember having any physical issues before that date. No matter how hard I try. So the onset was likely sudden not insidious.
An overview of my symptoms:
I fear ALS. Could this be respitatory-onset?
I don’t have:
I’ve had the following medical examinations so far:
Thank you for those reading this long story. I’m really scared of ALS. For my future. Crying alot. My family and my girlfriend are very worried too. I have no social life right now (and I really had a good one before), and things like my vacation are even on the line. I don’t now how much longer I can take this. Will I ever feel good again?
As I said, it all started on the 25th of february. Really out of nowhere. I was laying in my bed that evening, trying to fall asleep. All of a sudden I felt really weird. I started to shiver uncontrollably, got dizzy (light feeling in my head), short of breath and very weak. It was terrifying. Somehow I managed to fall asleep, hoping it would be over the next day. But it wasn’t. And it has been going downwards fast ever since. I can’t remember having any physical issues before that date. No matter how hard I try. So the onset was likely sudden not insidious.
An overview of my symptoms:
- It started with the symptoms mentioned above.
- Then I started to vomit small amounts (of food) throughout the day and experience more severe dizziness. This has been going on ever since. Like my esophagus isn’t strong enough to push everything through.
- A couple of weeks later I started to experience more digestive problems. Bad stools (very frequent), and pains throughout my belly. The weird thing is that the pains are gone now.
- Since four weeks fasciculations. Widespread, but especially in my nose, left-eye, legs and belly. Are getting worse.
- Some cramps in my legs. Are a little painful.
- Throughout: More and more fatigue (im so tired right now, especially in my arms and legs). Increasing shortness of breath, and weird weak feeling in my throat (like someone is choking me with his/her hands).
- Which concerns me the most is that im not breathing often, and not deep enough (hypoventilation?). This came out of nowhere.
I fear ALS. Could this be respitatory-onset?
I don’t have:
- Confirmed clinical weakness. I do feel very very weak (perceived), but I can’t detect any muscles not functioning at all so far. For example: I can still type, tie knots, push buttoms, write, speak properly, do some push-ups and pull-ups, tip-toes, tip-toes, calf raises, etc. It only takes alot of effort.
- Measured or noticed any atrophy in legs and arms so far. Measuring daily. I would like a doctor to confirm.
- Spasticity, as far as I can detect.
- Slurred speech. Nobody has noticed a change in voice (so far).
- Swallowing issues. Throat feels weird (thick, weak, globus), but I can still swallow without food or drinks getting stuck and coughing.
I’ve had the following medical examinations so far:
- Mutiple blood tests, including magnesium, glucose, vitamines B11 and B12, creatine-kinase (CK). All blood tests have been good.
- Urinanalysis, and multiple stool analysis (including parasites). All good.
- ECG. All good.
- A gastroscophy. Little irritation.
- Ecography of my belly. All good.
- CT-scan of thorax and belly. All good.
- Photo of my lungs. All good.
- Brief clinical exam neurologist (see below).
- Does a clean, well-performed, EMG rules out ALS at this stage (4 months into the misery).
Thank you for those reading this long story. I’m really scared of ALS. For my future. Crying alot. My family and my girlfriend are very worried too. I have no social life right now (and I really had a good one before), and things like my vacation are even on the line. I don’t now how much longer I can take this. Will I ever feel good again?