Devonsmith
New member
- Joined
- Oct 31, 2021
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- IL
- City
- Schaumburg
Hi guys firstly I just wanted to say thank you for reading this, wether you’re a PALS a caregiver or just family affected by this horrible disease im so sorry and I have been donating so much ever since finding out about it, I changed my degree to neuroscience actually ever since finding out about the horrifying nature of this disease.
So to start my story in June of last year I started feeling rly weird cramping/weakness feeling in my right arm while moving a couch. That progressed into twitching in that arm. I started to get very worried about ALS and fell down the rabbit hole that so many fall down. Well 6 months later in November I was having trouble chewing it felt super tiring, but at the doctor my PCP said I had no weakness. He still ordered me to go to a neuro to be sure. They tested my reflexes and said they were normal,then ordered a EMG. Everything was completely normal on the EMG, I thought that would be the end of it and that it was all in my head but NONE of my symptoms have gone away:/ it’s now been almost a year with symptoms and I guess my question is from June-may (11 months) would it be impossible to have no clinical weakness or failure by now? I know these are probably dumb questions but anyone that takes the time to answer thank you so so much
I’ve seen a lot of posts on these threads that are super insensitive and I hope this didn’t come off as such.
So to start my story in June of last year I started feeling rly weird cramping/weakness feeling in my right arm while moving a couch. That progressed into twitching in that arm. I started to get very worried about ALS and fell down the rabbit hole that so many fall down. Well 6 months later in November I was having trouble chewing it felt super tiring, but at the doctor my PCP said I had no weakness. He still ordered me to go to a neuro to be sure. They tested my reflexes and said they were normal,then ordered a EMG. Everything was completely normal on the EMG, I thought that would be the end of it and that it was all in my head but NONE of my symptoms have gone away:/ it’s now been almost a year with symptoms and I guess my question is from June-may (11 months) would it be impossible to have no clinical weakness or failure by now? I know these are probably dumb questions but anyone that takes the time to answer thank you so so much
I’ve seen a lot of posts on these threads that are super insensitive and I hope this didn’t come off as such.
