21 scared I have ALS

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Devonsmith

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Hi guys firstly I just wanted to say thank you for reading this, wether you’re a PALS a caregiver or just family affected by this horrible disease im so sorry and I have been donating so much ever since finding out about it, I changed my degree to neuroscience actually ever since finding out about the horrifying nature of this disease.

So to start my story in June of last year I started feeling rly weird cramping/weakness feeling in my right arm while moving a couch. That progressed into twitching in that arm. I started to get very worried about ALS and fell down the rabbit hole that so many fall down. Well 6 months later in November I was having trouble chewing it felt super tiring, but at the doctor my PCP said I had no weakness. He still ordered me to go to a neuro to be sure. They tested my reflexes and said they were normal,then ordered a EMG. Everything was completely normal on the EMG, I thought that would be the end of it and that it was all in my head but NONE of my symptoms have gone away:/ it’s now been almost a year with symptoms and I guess my question is from June-may (11 months) would it be impossible to have no clinical weakness or failure by now? I know these are probably dumb questions but anyone that takes the time to answer thank you so so much:) I’ve seen a lot of posts on these threads that are super insensitive and I hope this didn’t come off as such.
 

ShiftKicker

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Hi Devon,

Here's the last discussion from October- Scared sick of ALS.

After almost a year and no loss of function (the primary symptom of ALS), you're good to go!

Take care
 

affected

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Yeah I'd guess pretty much impossible to have no clinical weakness this far along, you are good to go as Shiftkicker says 👏
 
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