Lc06091
New member
- Joined
- Feb 19, 2021
- Messages
- 2
- Reason
- Loved one DX
- Diagnosis
- 00/0000
- Country
- US
- State
- GA
So to preface this, I sustained multi year childhood abuse that has lead me to have severe health anxiety. It is also confirmed that ALS runs in my family with my great-grandfather and 3 of his siblings as well as a nephew of his have all sadly passed from this disease.
I was roughly 15 when I was fully able to comprehend what caused my great-grandfathers death. After leaning that it was ALS, within a few months I began experiencing twitching throughout my body. Anywhere from my legs to my arms, face, neck, back, you name it and it would twitch. This was also much more noticeable when I was lying still or when I was concerned about it. Honestly it seems as though it’s much worsened when I sit and worry about it.
This has been going on for nearly 6 years now with no other symptoms until about 2 months ago. Around 2 months ago I had a strange feeling in my arm. Nothing major and not weakness just a strange feeling. Well it didn’t take long for me to fall down the hole of googling and thinking the worst, feeling like my time had finally came to finally start displaying symptoms. Soon it felt like both of my arms were not weak but very clumsy and I found myself feeling like my arms could move fine but they didn’t feel like they were working correctly.
I made an appointment with my dr and he didn’t seem to concerned. He ordered blood work and pretty much everything was normal other than having marginally high calcium levels and moderately low vitamin D (which my pcp never called me to elaborate on). After I’d say after 3 weeks or so my arms began to feel better especially after reading through these forums, and trying to worry less about it.
Now, I seem to have a weird sensation in my right calf. Again no weakness but it just feels strange, almost like a soreness when I walk. I have began stretching both of my calf’s and my right calf seems to ache more than my left when stretching. It also seems to be numb feeling sometimes, but never clinically weak.
I have read and read these forums and I’m sure that this is just my health anxiety but my family history of ALS makes me nervous. My great-grandfather had the disease, but my grandmother who is in her mid 60’s and my mother in her early 40’s show no symptoms at all. I am 21 and realize that my anxiety is probably causing this but with a family who doesn’t worry at all about it and a lack luster experience with the Dr., I am just trying to find some sort of reassurance.
I was roughly 15 when I was fully able to comprehend what caused my great-grandfathers death. After leaning that it was ALS, within a few months I began experiencing twitching throughout my body. Anywhere from my legs to my arms, face, neck, back, you name it and it would twitch. This was also much more noticeable when I was lying still or when I was concerned about it. Honestly it seems as though it’s much worsened when I sit and worry about it.
This has been going on for nearly 6 years now with no other symptoms until about 2 months ago. Around 2 months ago I had a strange feeling in my arm. Nothing major and not weakness just a strange feeling. Well it didn’t take long for me to fall down the hole of googling and thinking the worst, feeling like my time had finally came to finally start displaying symptoms. Soon it felt like both of my arms were not weak but very clumsy and I found myself feeling like my arms could move fine but they didn’t feel like they were working correctly.
I made an appointment with my dr and he didn’t seem to concerned. He ordered blood work and pretty much everything was normal other than having marginally high calcium levels and moderately low vitamin D (which my pcp never called me to elaborate on). After I’d say after 3 weeks or so my arms began to feel better especially after reading through these forums, and trying to worry less about it.
Now, I seem to have a weird sensation in my right calf. Again no weakness but it just feels strange, almost like a soreness when I walk. I have began stretching both of my calf’s and my right calf seems to ache more than my left when stretching. It also seems to be numb feeling sometimes, but never clinically weak.
I have read and read these forums and I’m sure that this is just my health anxiety but my family history of ALS makes me nervous. My great-grandfather had the disease, but my grandmother who is in her mid 60’s and my mother in her early 40’s show no symptoms at all. I am 21 and realize that my anxiety is probably causing this but with a family who doesn’t worry at all about it and a lack luster experience with the Dr., I am just trying to find some sort of reassurance.
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