MrTuck
New member
- Joined
- Oct 3, 2023
- Messages
- 5
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- TX
- City
- Victoria
Hi I’m 20 years old male and have been experiencing weird symptoms since May/June (was 19 until July)(October currently so I’ve been experiencing this for about 5 months) . I’ve mainly been experiencing twitching and weird sensations in my body, balance and dizziness. Started out with twitching in the legs but within a month was all over my body. Also noticed loss of balance just wasn’t as steady on my feet like I used to be. This was after I spent some time in a mental hospital taking a bunch of anti psychotic drugs maybe 2 months prior.
The doctor told me that this could be a side effect of the specific medications I was taking, I had to take a shot in the back and pills for like a month or 2.
I’ve done a lot of research, and have been scared reading about ALS and need opinions from people, I haven’t seen a neurologist yet, but am hoping to see one soon. Family doesn’t seem as concerned as me so I need maybe another kind of 3rd party insight into what I’m experiencing.
The main things I’m concerned about is the twitching . It used to be in the legs and has seemed to spread everywhere. It seems now that it has no pattern and will be completely random, say my face will twitch and then my leg will twitch . My butt, back , face, neck, stomach , chest , testicles, tendons in my arms that move my fingers, any part of the body you can think. With no real pattern and doesn’t quite look like what I’ve seen online but wanted to see if anyone else experiences that kind of twitching.
Also get internal tremors, buzzing in random parts of my body, occasional short lasting pain, from burning sensations to sharp pains , to dull pains . Have maybe got 2 cramps in the last 5 months not to concerned about that but thought I should mention that.
Also have seemingly had some tongue twitching can sometimes feel it and wanted to know what people feel when their tongue twitches and if I should worry about ALS I know there’s bulbar and limb onset but why would I be experiencing both? Is that possible?
Do people with als progress like this(it’s been 5 months since the first twitching) or have feelings similar? No loss of muscle function , no speech loss, my right leg seems a little skinnier and feels kind of tired occasionally( mainly when laying down) but I can do everything with it still can squat my body weight on that leg, though it’s not too sturdy seems my balance is pretty messed up.
I know it’s a lot to answer and read but would really appreciate feedback and some of y’all’s time.
Have also had numbness in hands occasionally when I wake up from a deep sleep. And occasional body jerks when I try to sleep. Have had a couple times where my limbs felt paralyzed while I was going to sleep or waking and couldn’t move them correctly for about a minute and then they go back to normal when I’m fully awake. Forgot to mention that so input on that is greatly appreciated.
Haven’t had this in a while but felt like I should mention it since it was another weird occurrence. Also sharp pain headaches in the front of my head and sometimes dull headaches in the front side and occasionally back.
The doctor told me that this could be a side effect of the specific medications I was taking, I had to take a shot in the back and pills for like a month or 2.
I’ve done a lot of research, and have been scared reading about ALS and need opinions from people, I haven’t seen a neurologist yet, but am hoping to see one soon. Family doesn’t seem as concerned as me so I need maybe another kind of 3rd party insight into what I’m experiencing.
The main things I’m concerned about is the twitching . It used to be in the legs and has seemed to spread everywhere. It seems now that it has no pattern and will be completely random, say my face will twitch and then my leg will twitch . My butt, back , face, neck, stomach , chest , testicles, tendons in my arms that move my fingers, any part of the body you can think. With no real pattern and doesn’t quite look like what I’ve seen online but wanted to see if anyone else experiences that kind of twitching.
Also get internal tremors, buzzing in random parts of my body, occasional short lasting pain, from burning sensations to sharp pains , to dull pains . Have maybe got 2 cramps in the last 5 months not to concerned about that but thought I should mention that.
Also have seemingly had some tongue twitching can sometimes feel it and wanted to know what people feel when their tongue twitches and if I should worry about ALS I know there’s bulbar and limb onset but why would I be experiencing both? Is that possible?
Do people with als progress like this(it’s been 5 months since the first twitching) or have feelings similar? No loss of muscle function , no speech loss, my right leg seems a little skinnier and feels kind of tired occasionally( mainly when laying down) but I can do everything with it still can squat my body weight on that leg, though it’s not too sturdy seems my balance is pretty messed up.
I know it’s a lot to answer and read but would really appreciate feedback and some of y’all’s time.
Have also had numbness in hands occasionally when I wake up from a deep sleep. And occasional body jerks when I try to sleep. Have had a couple times where my limbs felt paralyzed while I was going to sleep or waking and couldn’t move them correctly for about a minute and then they go back to normal when I’m fully awake. Forgot to mention that so input on that is greatly appreciated.
Haven’t had this in a while but felt like I should mention it since it was another weird occurrence. Also sharp pain headaches in the front of my head and sometimes dull headaches in the front side and occasionally back.
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will post doctors thoughts when I’m able to get in whenever that may be.
