Hey everyone, I am 20, and have been twitching for about 10 months now. I am very worried about having als, so please keep with me .
My twitching started in my right shoulder, then was a bit bodywide, and spread to my left tricep, where it was on and off for 2 months ! It would usually go away with movement or rapid change of activity. It miraculously went away when I went for a school trip, however I slowly started getting some body wide twitching after 2 weeks, and sometimes in my tricep again. However that tricep muscle would twitch rarely, and my forearm became the most affected. At first I would have only like 3-4 episodes of twitches a day in the arm, lets say a period o 5 twitches in the forearm, then one pop in the tricep etc...combined with twitches in other places which I did not count though. It was stable like this for a long time, and seemed to get worse with anxiety, there were days when I pretty much did not even twitch bodywide, and got only 2 periods of twitching in my arm, one tricep and one forearm for example. It slowly also moved to my right hand, but the consistency of twitches was lower of same as my left.
The problem is, I pushed towads an emg a month and a half ago, which was quite weird, but my NCS showed low amplitude of medial motor nerve. Since then my twitching increased, especially in my calfs, thights etc. 2 days ago I had an emg done at a researacher, who works for the main neurologist in my country, the needle part was done on 15 muscles and all of them were completely fine, no fascics, full reqruitment, she says this is like textbook examples how it should be. The problem is, my NCS again showed low medial nerve amplitude. 3.9mV, the right showed 8. something...So, now I am worried about this, I read that amplitude is affected usually by degeneration and lowers with weakness, however I found some cases here where low amplitude was on their strong mucles (1 case however of not fully confirmed als, but the other case seems legit). 3.9 mV is too low for my age, the first NCS showed 2.6, but there maybe was error, and I cannot really compare whether the amplitude increased or decreased. In every textbook I read, that this happens after weakness, but still I found a case here where he had low amplitude and no weakness.
So my questions are, anyone here presented the same way ? Is it possible for me to have als ?
Is my twitching, like 4-7 periods in a limb (and in different musces of the limb, for example, 3 in diff forearm muscles, 2 in tricep and 1 in bicep) similar to anyones or did was your twitching more constant if it was the first symptom ?
I am still able to gain strength and bulk when working out, anyone here managed the same when having symptoms ?
I appreciate your help, thanks
My twitching started in my right shoulder, then was a bit bodywide, and spread to my left tricep, where it was on and off for 2 months ! It would usually go away with movement or rapid change of activity. It miraculously went away when I went for a school trip, however I slowly started getting some body wide twitching after 2 weeks, and sometimes in my tricep again. However that tricep muscle would twitch rarely, and my forearm became the most affected. At first I would have only like 3-4 episodes of twitches a day in the arm, lets say a period o 5 twitches in the forearm, then one pop in the tricep etc...combined with twitches in other places which I did not count though. It was stable like this for a long time, and seemed to get worse with anxiety, there were days when I pretty much did not even twitch bodywide, and got only 2 periods of twitching in my arm, one tricep and one forearm for example. It slowly also moved to my right hand, but the consistency of twitches was lower of same as my left.
The problem is, I pushed towads an emg a month and a half ago, which was quite weird, but my NCS showed low amplitude of medial motor nerve. Since then my twitching increased, especially in my calfs, thights etc. 2 days ago I had an emg done at a researacher, who works for the main neurologist in my country, the needle part was done on 15 muscles and all of them were completely fine, no fascics, full reqruitment, she says this is like textbook examples how it should be. The problem is, my NCS again showed low medial nerve amplitude. 3.9mV, the right showed 8. something...So, now I am worried about this, I read that amplitude is affected usually by degeneration and lowers with weakness, however I found some cases here where low amplitude was on their strong mucles (1 case however of not fully confirmed als, but the other case seems legit). 3.9 mV is too low for my age, the first NCS showed 2.6, but there maybe was error, and I cannot really compare whether the amplitude increased or decreased. In every textbook I read, that this happens after weakness, but still I found a case here where he had low amplitude and no weakness.
So my questions are, anyone here presented the same way ? Is it possible for me to have als ?
Is my twitching, like 4-7 periods in a limb (and in different musces of the limb, for example, 3 in diff forearm muscles, 2 in tricep and 1 in bicep) similar to anyones or did was your twitching more constant if it was the first symptom ?
I am still able to gain strength and bulk when working out, anyone here managed the same when having symptoms ?
I appreciate your help, thanks