10 Months Still Waiting.....

[BlueandGold]

Thanks Nikki. Appointment is March 30th. Neurologist is Dr. David Libel.

 

[lgelb]

Ask about Kennedy's disease when you go to WVU. There is a genetic test that can be done if they think it's a possibility.

 

[BlueandGold]

Wow. Thank you so much. No one has ever even mentioned Kennedy's to me. My symptoms certainly fit. I will definitely will inquire about this test. Maybe because I wasn't exhibiting any bulbar issues back in September when I was at the Cleveland Clinic they didn't mention this as a possibility?

Thanks again. So very helpful.