pdcraig
Distinguished member
- Joined
- Mar 2, 2013
- Messages
- 101
- Reason
- Lost a loved one
- Diagnosis
- 09/2012
- Country
- CA
- State
- ontario
- City
- oshawa
Hi everyone,
it been a very long time since I was here. I needed to take a step back.
Years ago, we had done personality tests, basic extrovert vs introvert. It was based on how you recharged. Did you feed off of the energy of a crowd or did you need time alone. I fall into the latter. I find being around people all the time exhausting, need my alone time.
Of course every grief counsellor tells you to get out, be around people, don't be alone. I found it rather stressful and draining being around people. It always felt like I was putting on a show. I'm doing okay, everything is fine. Not wanting people to worry about me but honestly, it was not soothing or comforting, at least not for me. Eventually I kind of backed off, kept in touch but from a distance. Honestly, after the last 6 years, all I wanted was some peace.
It's very hard to explain to people that yes I am fine, but no things are not okay. It's really okay that things aren't great right now. It's perfectly fine to be sad, to cry, to mourn. No it's not "over". No, it's not a straight line from point A to point B. I'm not getting through anything, over anything nor do I need to be getting on with my life. I never stopped living my life, took quite an unexpected turn, sure, but it's a journey like any other, I'll get there on my own, in my own time, just like always.
I do realize it came from a place of caring and concern but seriously, I'm not going to shatter. I'm good.
i always thought Ferd being sick and being his caregiver was the worst experience imaginable. Wouldn't trade a minute of it, but wouldn't wish it on anyone. This part is worse. A surreal, different kind of worse.
Sometimes it feels a bit like a dream, did this really happen? How did I ever do that? How can he not be here anymore? This is not the way it was supposed to be.
I think the hardest part of grief or grieving is to allow yourself to just be. Be sad, be happy, laugh, cry, sell the house, stay, go get help, don't get help, get rid of everything, keep everything. Doesn't matter what anyone else thinks or expects, be honest with yourself and what you need. It's your path, no one else knows you like you do. There is no right way or wrong way, just your way. For me, it meant spending far more time alone than anyone else thought was healthy. I know this isn't a new thought, it comes up here all the time but it really does bear repeating. It's far too easy to get caught up in other people's ideas or expectations of how things should be. Kind of reminiscent of being a CALS, always somebody ready and willing to tell you how it should be or what you're doing wrong.
I've made it through all of the firsts, our birthdays, Christmas, spent New years with his family which was unexpectedly a lot of fun, made it through our anniversary on Valentine's Day. All pretty good. Better than I thought really. Sure I miss Ferd, probably always will but the memories make me smile most of the time. I remember the goofy things we did, laughing together, hearing him sing, sometimes just how insufferable he could be about things. I even did a bit of peer counselling for a new CALS who lives near me. Doing okay, sure there are moments, but normally, just moments. Then the 22nd of April rolled around. Hit me like a truck.
I was talking with a colleague about how hard a time I was having. How it had taken me a bit by surprise after all of this time and getting through all of the other things without feeling this way. She replied it wasn't strange at all. For all of the other things, I had 20 years of great memories to draw on. This was different, all I had for this were memories of pain and loss. No mystery at all. Didn't make me feel better or shed any fewer tears but it did make me realize this is okay too. A year ago, yesterday, I was at Ferd's funeral. That's where the surreal part kicks in, how can that be?
But I've got this, I can do this. We can all do this. We've already been through one impossible experience being CALS already. keep taking it one step at a time, just like always.
It's hard coming back here. Unfortunately, it ends the same for all of us. Sue, Becky, Lenore, Nina and to everyone who is here, my heart goes out to you, I wish I could have been here to offer the support you all showed me. This family we have here is never far from my thoughts. Really an incredible group of people.
I wrote something for the memorial I'd like to share. I think most of us could have written something similar.
Paul
Prince of Persistence
--o0:|0o--
The Loudest Silence
Right from the start, completely done in
By your beautiful voice, that mischievous grin
When you walked in a room, it made my heart pound
You lit up my life, you filled it with sound
Awkward hugs, misplaced kisses, who knew I would miss them
The percussion, our steps, as we danced in the kitchen
We laughed, and we sang, we bickered and fought
My own ever after, at least that's what I thought
Not one of us perfect, but perfect as one
Maybe dysfunction, but we were the fun
This unlikely pairing, of you and of me
Hand in hand, going forward, united as we
But fate can be cruel, relentless, unkind
The path hard to walk, as it twists and it winds
Through heartache and loss, through sorrow and pain
To that one final place, not to see you again
But we travelled that road, all its dips and its bends
Your hand still in mine, right up to the end.
No longer together, no more us, only me
My solace, just this, you are finally free
In the dark of the night, I don't see you in dreams
No visits at midnight, not sure what that means
Was nothing unfinished, no words left to say
Or you know how unwilling, I'd wake to the day
I remember your smile, and still hear you sing
Your absolute faith, I could do anything
The stillness,it echoes, in this house we called home
Completely unsure, how to do this alone
The quiet enfolds me, so thick and so dense
Here, without you, the loudest silence
it been a very long time since I was here. I needed to take a step back.
Years ago, we had done personality tests, basic extrovert vs introvert. It was based on how you recharged. Did you feed off of the energy of a crowd or did you need time alone. I fall into the latter. I find being around people all the time exhausting, need my alone time.
Of course every grief counsellor tells you to get out, be around people, don't be alone. I found it rather stressful and draining being around people. It always felt like I was putting on a show. I'm doing okay, everything is fine. Not wanting people to worry about me but honestly, it was not soothing or comforting, at least not for me. Eventually I kind of backed off, kept in touch but from a distance. Honestly, after the last 6 years, all I wanted was some peace.
It's very hard to explain to people that yes I am fine, but no things are not okay. It's really okay that things aren't great right now. It's perfectly fine to be sad, to cry, to mourn. No it's not "over". No, it's not a straight line from point A to point B. I'm not getting through anything, over anything nor do I need to be getting on with my life. I never stopped living my life, took quite an unexpected turn, sure, but it's a journey like any other, I'll get there on my own, in my own time, just like always.
I do realize it came from a place of caring and concern but seriously, I'm not going to shatter. I'm good.
i always thought Ferd being sick and being his caregiver was the worst experience imaginable. Wouldn't trade a minute of it, but wouldn't wish it on anyone. This part is worse. A surreal, different kind of worse.
Sometimes it feels a bit like a dream, did this really happen? How did I ever do that? How can he not be here anymore? This is not the way it was supposed to be.
I think the hardest part of grief or grieving is to allow yourself to just be. Be sad, be happy, laugh, cry, sell the house, stay, go get help, don't get help, get rid of everything, keep everything. Doesn't matter what anyone else thinks or expects, be honest with yourself and what you need. It's your path, no one else knows you like you do. There is no right way or wrong way, just your way. For me, it meant spending far more time alone than anyone else thought was healthy. I know this isn't a new thought, it comes up here all the time but it really does bear repeating. It's far too easy to get caught up in other people's ideas or expectations of how things should be. Kind of reminiscent of being a CALS, always somebody ready and willing to tell you how it should be or what you're doing wrong.
I've made it through all of the firsts, our birthdays, Christmas, spent New years with his family which was unexpectedly a lot of fun, made it through our anniversary on Valentine's Day. All pretty good. Better than I thought really. Sure I miss Ferd, probably always will but the memories make me smile most of the time. I remember the goofy things we did, laughing together, hearing him sing, sometimes just how insufferable he could be about things. I even did a bit of peer counselling for a new CALS who lives near me. Doing okay, sure there are moments, but normally, just moments. Then the 22nd of April rolled around. Hit me like a truck.
I was talking with a colleague about how hard a time I was having. How it had taken me a bit by surprise after all of this time and getting through all of the other things without feeling this way. She replied it wasn't strange at all. For all of the other things, I had 20 years of great memories to draw on. This was different, all I had for this were memories of pain and loss. No mystery at all. Didn't make me feel better or shed any fewer tears but it did make me realize this is okay too. A year ago, yesterday, I was at Ferd's funeral. That's where the surreal part kicks in, how can that be?
But I've got this, I can do this. We can all do this. We've already been through one impossible experience being CALS already. keep taking it one step at a time, just like always.
It's hard coming back here. Unfortunately, it ends the same for all of us. Sue, Becky, Lenore, Nina and to everyone who is here, my heart goes out to you, I wish I could have been here to offer the support you all showed me. This family we have here is never far from my thoughts. Really an incredible group of people.
I wrote something for the memorial I'd like to share. I think most of us could have written something similar.
Paul
Prince of Persistence
--o0:|0o--
The Loudest Silence
Right from the start, completely done in
By your beautiful voice, that mischievous grin
When you walked in a room, it made my heart pound
You lit up my life, you filled it with sound
Awkward hugs, misplaced kisses, who knew I would miss them
The percussion, our steps, as we danced in the kitchen
We laughed, and we sang, we bickered and fought
My own ever after, at least that's what I thought
Not one of us perfect, but perfect as one
Maybe dysfunction, but we were the fun
This unlikely pairing, of you and of me
Hand in hand, going forward, united as we
But fate can be cruel, relentless, unkind
The path hard to walk, as it twists and it winds
Through heartache and loss, through sorrow and pain
To that one final place, not to see you again
But we travelled that road, all its dips and its bends
Your hand still in mine, right up to the end.
No longer together, no more us, only me
My solace, just this, you are finally free
In the dark of the night, I don't see you in dreams
No visits at midnight, not sure what that means
Was nothing unfinished, no words left to say
Or you know how unwilling, I'd wake to the day
I remember your smile, and still hear you sing
Your absolute faith, I could do anything
The stillness,it echoes, in this house we called home
Completely unsure, how to do this alone
The quiet enfolds me, so thick and so dense
Here, without you, the loudest silence