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pittsburghgal

Senior member
Joined
Jan 7, 2016
Messages
553
Reason
Lost a loved one
Diagnosis
11/2011
Country
US
State
PA
City
Pittsburgh
Becky, you have been an inspiration to me in your amazing efforts to get Matt out to do the things he loved. I am so sorry you are dealing with this now. You and Matt are in my thoughts and prayers.

Sharon
 

affected

Guru status reached
Joined
Apr 26, 2013
Messages
12,697
Reason
Lost a loved one
Diagnosis
05/2013
Country
OZ
State
AU
City
lala land
There is no greater gift once can give to the person they love most than a peaceful passing filled with love. If Matt upstages you, then he is giving you a gift.

You have me otherwise speechless, so much love to you Becky xxx
 

lgelb

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Forum Supporter
Joined
Nov 5, 2009
Messages
8,929
Reason
Lost a loved one
Diagnosis
00/0000
Country
US
State
WA
City
Seattle
Becky, Sue and anyone else wondering if you have the strength to remove the mask/interface and stop the machine -- if you are strong enough to wonder, you are strong enough to do it.

I only say this because I agree from experience that it would give you some measure of peace to be those "last hands" fulfilling his last request, the hands that have fulfilled so many, all for him. It is part of giving that "last, best gift."

Best,
Laurie
 

swalker

Very helpful member
Joined
Dec 11, 2014
Messages
1,245
Reason
DX MND
Diagnosis
07/2014
Country
US
State
CO
City
Vail
Becky,

You, Matt, and your family are in my prayers.

I am glad that Matt was able to make his wishes known in time so that you don't have any ambiguity about what he wants.

Steve
 

KateEmerson

Senior member
Joined
Apr 23, 2016
Messages
511
Reason
Lost a loved one
Diagnosis
09/2013
Country
US
State
MA
City
Boston
Becky,

Sending you thoughts of strength. And hope you are both surrounded in love, comfort, and peace as you and Matt finish this journey together.

Kate
 

Loverly

Distinguished member
Joined
Oct 28, 2014
Messages
194
Reason
Lost a loved one
Country
US
State
CA
City
Orange County
I’m glad I turned up in time to hold this space for you and Matt. Life is a god awful thing, isn’t it? I love you. I love you. I love you. That’s what I will be thinking when I say your name over the next few days and weeks.

Jennifer.
 

maryhahnward

Distinguished member
Joined
Jun 17, 2009
Messages
442
Reason
CALS
Diagnosis
06/2010
Country
US
State
NC
City
Wilmington
Becky, your strength and love for Matt is incredible. Taking the time you have to share with us throughout this journey has been beyond inspiring. You and Matt are both my heroes and will be forever.

Love & Peace,

Mary
 

Nuts

Extremely helpful member
Forum Supporter
Joined
Feb 23, 2014
Messages
2,549
Reason
Lost a loved one
Diagnosis
01/2014
Country
US
State
NC
City
Littleton
Day Five and it's been a whirlwind.

I was strong through most of Sunday. We started with just our four children and I, and the nursing and hospice staff, in the room when I removed Matt's vent. Two hours later I opened the room to his father and siblings. If anyone wants the details of how things go, please PM me. I just can't do it here.

I miss him terribly, but I'm at peace. I know it was time and I feel like he is free. I'm already starting to remember the strong man I married, rather than what ALS did to him. I've found that being around people he knew before is helping with that.

Matt wanted a viewing and visitation followed by a service in the church he grew up in, so Friday night and Saturday we will welcome friends and family.

Our kids have been rocks. I'm so fortunate. My brain can handle only one thing at a time right now, and each new thing takes awhile to bubble it's way past the numbness and into the light.

Becky
 

Narrowminded

Extremely helpful member
Joined
Apr 30, 2016
Messages
2,631
Reason
Lost a loved one
Diagnosis
07/2007
Country
US
State
PA
City
Pittsburgh
Becky - thank you for the update. Praying peace and calm for you as you work through this week.

Hugs,
 

KateEmerson

Senior member
Joined
Apr 23, 2016
Messages
511
Reason
Lost a loved one
Diagnosis
09/2013
Country
US
State
MA
City
Boston
Becky, thinking of you and glad you have peace during this difficult time. Kate
 

Jrzygrl

Senior member
Joined
Feb 14, 2017
Messages
636
Reason
Lost a loved one
Diagnosis
08/2014
Country
US
State
NJ
City
X
Sending wishes for strength and peace.
 
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