Hello. First of all, if you take the time out of your day to read this, thank you. I have been to my GP, as well as a neurologist and am basically in limbo waiting for an EMG. This is extremely hard having symptoms every single day and trying not to think the worst.
I am 28 yo female. 1.5 months ago I had some twitching in the left side of my face. I have a periacular sinus in my ear so I kind of assumed they may be messing with some facial nerves. No big deal.
Next couple days I get woken up by this pretty intense shooting pain in my left arm, and then woken up the next night with my arm going numb multiple times. 2 days was still there so I googled and either MS or ALS pops up. Absolute panic ensued.
My left hand and left calf started to feel funny. I can't explain it, but my left hand/arm felt very fatigues and not dexterous, and my freaking calf has this strange ticklish and weak feeling when I would stand/walk/press my toes into the floor.
I saw my GP about 3 weeks in. At this point I started getting intense vibration feeling in my feet with exercise and tingling on the left outside of my food when I showered in hot water. Mainly my calf was bothering me and still felt the strange weak/ticklish sensation when being used. She did a general strength test which she said was ok but sent me to neuro. Saw the neuro (meanwhile all these things are still happening) and he said he didn't think it was MS or ALS, but thought something was going on.
About 4 weeks in....I start twitching. Most inmy left calf (about 80% of the time) however in other body parts as well. My anxiety at this time was excruciatingly high and I actually was called in hydroxyzine by my GP at her visit. I wasn't eating, I wasn't sleeping.
So as of now, my left leg has started shaking very bad when I put weight on it and does try to give out. Walking has become more difficult and feels awkward, and like if I don't think about walking my leg will give. The whole shaking uncontrollably just in that left leg thing scares the absolute hell out of me. That and the twitching. I am still twitching.
The twitching really only happens when I am at rest and immediately after I stop using the muscle, like stopping walking or sitting/laying down. When I use my legs to turn in bed, the muscle twitches. My arm now on the left side has also started twitching after use and at rest. I do get twitching in other places of my body, but as I said, the majority are in my calf/leg and arm. Starting to get more in the right leg now too.
I think the arm weakness waxes and wanes, but the leg thing has gotten worse. At least before it just felt funny and I could walk ok. Now my calf gets tight once I start walking and my knee feels like it's giving out.
I am extremely scared. I have a 1 year old daughter. Everytime I look at her or my Husband I just cry because I think something is going on..
I keep running through all the possible scenarios in my head of what it could be, but the twitching and the leg giving out and strange feeling I my calf muscle, the tensing in the calf when walking....I feel like I am running out of plausible options.
I was thinking MS at first, but the twitching doesn't match. Maybe autoimmune but it's only affecting my left leg. Pinched nerve is possible, but I haven't had an injury in the past 2 months.
I am just so completely lost. My husband is tired of hearing about it. And I feel like I can't make any life plans because it'll be ALS and then what is the point?
I am supposed to have bloods done for autoimmune issues before the EMG on March 5th. I seriously feel like I won't make it that long.
Any advice on what this sounds like would be appreciated. I am baeely holding on by a thread at this point. Every time I feel my calf twitch or my leg start shaking I spiral into anxiety and depression.
I am 28 yo female. 1.5 months ago I had some twitching in the left side of my face. I have a periacular sinus in my ear so I kind of assumed they may be messing with some facial nerves. No big deal.
Next couple days I get woken up by this pretty intense shooting pain in my left arm, and then woken up the next night with my arm going numb multiple times. 2 days was still there so I googled and either MS or ALS pops up. Absolute panic ensued.
My left hand and left calf started to feel funny. I can't explain it, but my left hand/arm felt very fatigues and not dexterous, and my freaking calf has this strange ticklish and weak feeling when I would stand/walk/press my toes into the floor.
I saw my GP about 3 weeks in. At this point I started getting intense vibration feeling in my feet with exercise and tingling on the left outside of my food when I showered in hot water. Mainly my calf was bothering me and still felt the strange weak/ticklish sensation when being used. She did a general strength test which she said was ok but sent me to neuro. Saw the neuro (meanwhile all these things are still happening) and he said he didn't think it was MS or ALS, but thought something was going on.
About 4 weeks in....I start twitching. Most inmy left calf (about 80% of the time) however in other body parts as well. My anxiety at this time was excruciatingly high and I actually was called in hydroxyzine by my GP at her visit. I wasn't eating, I wasn't sleeping.
So as of now, my left leg has started shaking very bad when I put weight on it and does try to give out. Walking has become more difficult and feels awkward, and like if I don't think about walking my leg will give. The whole shaking uncontrollably just in that left leg thing scares the absolute hell out of me. That and the twitching. I am still twitching.
The twitching really only happens when I am at rest and immediately after I stop using the muscle, like stopping walking or sitting/laying down. When I use my legs to turn in bed, the muscle twitches. My arm now on the left side has also started twitching after use and at rest. I do get twitching in other places of my body, but as I said, the majority are in my calf/leg and arm. Starting to get more in the right leg now too.
I think the arm weakness waxes and wanes, but the leg thing has gotten worse. At least before it just felt funny and I could walk ok. Now my calf gets tight once I start walking and my knee feels like it's giving out.
I am extremely scared. I have a 1 year old daughter. Everytime I look at her or my Husband I just cry because I think something is going on..
I keep running through all the possible scenarios in my head of what it could be, but the twitching and the leg giving out and strange feeling I my calf muscle, the tensing in the calf when walking....I feel like I am running out of plausible options.
I was thinking MS at first, but the twitching doesn't match. Maybe autoimmune but it's only affecting my left leg. Pinched nerve is possible, but I haven't had an injury in the past 2 months.
I am just so completely lost. My husband is tired of hearing about it. And I feel like I can't make any life plans because it'll be ALS and then what is the point?
I am supposed to have bloods done for autoimmune issues before the EMG on March 5th. I seriously feel like I won't make it that long.
Any advice on what this sounds like would be appreciated. I am baeely holding on by a thread at this point. Every time I feel my calf twitch or my leg start shaking I spiral into anxiety and depression.
Last edited by a moderator: