1. S

    Young and really scared

    Hello everyone, First I wanted to say that I do not mean to offend anyone but I am in a scared limbo situation.Ok,I am an 18 year old male and my first symptom was 2 years ago. My right leg felt weak and I was walking weird but then it went away.However, when time was passing by I noticed...
  2. B

    Thoughts Please?

    Hi there , I am new to this site because I would like some information and thoughts . I am a 23 year old female from Australia (I know from researching statistics the likeliness of me having ALS/MND is very unlikely). My story begins a year and a half ago. I had very strange flu like symptoms...
  3. jethro

    Did anyone tried this?

    Since theres no drug to cure als, even make plateau, reversal i dont even want to mention, since theres no known cause for it, - why do young and old people could be in a same pair of shoes, did anyone try to COMPLETELY change way of living? i dont think just of food, excercise etc, but did...
  4. jethro

    SALS turns into FALS

    ALS makes changes in DNA. Genes are in chromosomes which consists of proteins and DNA. Does it mean that SALS can turn into FALS? SALS is specific for older population, but some young people have it in reproductive age. This question is generated after i heard new born baby scream in...
  5. F


    I have not posted in a while, but mom passed on Feb 22 from respiratory failure, she lived 16 months with the disease and what was heartbreaking is that despite us knowing this would happen we did not know it was going to be so soon, from laughing with her on Saturday to seeing her fall sleep on...
  6. F

    Geezer Doctor

    The Retired Doctor An old physician, Doctor Gordon Geezer, became very bored in retirement and decided to re-open a medical clinic. He put a sign up outside that said: "Dr. Geezer's clinic. Get your treatment for $500 - if not cured, get back $1,000." Doctor Digger Young, who was...
  7. J

    SMA or ALS

    Hi everyone, first of all, english is not my native language so sorry if my words confuse you. So I have been diagnosed with a mild type of SMA for 7 years, since I was 16-17 year old. I do a check up once every 2 years, and the result is still SMA everytime. The disease first starts with my...
  8. M

    Stem cell transplants

    My Dad who is 60 an active and daily exercise this entire life was just diagnosed with ALS last week. We are totally devasted and feel completely overwhelmed at the task of trying to slow or better yet stop the progression of this disease. He has 4 children, a wife, 3 young grandchildren that...
  9. A

    Curious about my symptoms

    Hello I have been having some muscle twitches for about 3 weeks. I went to a primary care doctor and she said that my reflexes were normal and to relax about my symptoms. I don’t seem to have any strength lost but have been having trouble sleeping due to my muscles twitching. It feels like a...
  10. K

    New Member from U.S.

    Hi, I'm a new member from Tennessee. My 34 year old son was diagnosed with ALS almost two years ago. He has a beautiful wife and two young children. I help provide care for my son and his family as often as they need me. It's difficult as a mom to watch my son progress but I'm trying to be...
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