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  1. V

    No hope...definately bulbar ALS

    Hello, First of all thank you who will read my story. It is hard time for me now and i thought over of other possibilities, that could affect my health, but only bulbar ALS pops up in my mind. Everything started on march. I had a flu type virus for about two weeks and my left face side was...
  2. 1

    In need of advice

    Hi. First of my heart goes out to all who are affected by such a terrible disease, friends and family members included. Now, I have been having an array of symptoms for sometime now. I am currently awaiting my appt for my Emg and I am a bit nervous. I would appreciate any advice about whether...
  3. A

    Healthy Anxiety - Thank You

    Hello, I have been on this forum for some time now, but I recently just joined. I know I suffer from health anxiety, a panic disorder, and long before everything else general anxiety. I recently lost 3 loved ones this year, but death isn't new to me. One of my uncles died of complications in his...
  4. T

    Texas/condom catheter - help!

    Hi all, I don’t know what I’m doing wrong. We have the tubing and bag pretty much below his bladder except when it comes out of the catheter and goes down his leg when sitting. It goes sraitet when he is lying down. When he goes it doesn’t empty into the bag.m all the way. Some urine sits...
  5. L

    I feel helpless

    For the last four months, I have experienced a rapid decline in health. It started with severe constipation, in which after every series of gastrointestinal test, nothing was found,except that my parsistalsis had slowed tremendously. From that point I began having problems with my legs, numbness...
  6. B

    Sorry to bother

    Hello First I want to say I am so sorry for the affects this disease has caused on peoples lives. I have neurologist appointment but I am about a month and half away from it. I have some symptoms that I would like to run by to see if I can rule out ALS So I didn't really notice anything...
  7. T

    Diagnosis At Last

    Hello everyone. My husband of 30 years was diagnosed 3rd October 2018 of Bulbar Onset/ALS. It was a relief for us all to have a diagnosis as we was wondering all sorts what was wrong with him. He started to talk slowler than usual in January this year, and gradually got worse over the months...
  8. F

    Worried

    Hello everyone, I decided to post here after days of anxiety and depression. I am a 24 year old female. My symptoms started 2 and 1/2 weeks ago when both of my hands cramped. They kept cramping no matter what I did. I then felt sudden weakness. I went to the emergency where they told me to go...
  9. D

    Communicate with Dr & Advice

    Hello All, First of I would like to say thank you for opening this forum to people like myself that dont know whats going on with us and are scared sh-less. I think its great that your open to helping both people with ALS and those that are not yet diagnosed or that are just suffering from...
  10. K

    Got my EMG today

    Hey all, hope you’re doing good today. Just to prefise, I’ve calmed down since my last post, and I’m taking the necessary steps to find out what’s wrong with me whether it be anxiety or something else. So I got my EMG today at NMC, by a neurologist that specializes in ALS/MND, so I’m sure it was...
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