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  1. C

    Abnormal EMG/Twitching- Any hope?

    Hi all, sorry for the long post but need to get it out... I have been lurking for a few weeks now. I have had twitching- mainly in the calves/thighs/butt- for 2-3 weeks now. Had been mainly in my quad next to my knee but rarely it twitches there now. Legs are pretty much non stop at rest...
  2. N

    My PALS is now in heaven

    My love is gone. I feel numb and lost even though I thought I was prepared for this. He hung on so so long, I don’t know how, but he did. This journey has forever changed me and my family. The little ones seem to be coping okay so far (way more clingy though), and I am trying to find a new...
  3. A

    Probable ALS - no diagnosis

    First off, I want to thank you all so much for the invaluable wisdom so many of you have shared here. You have helped so many (including me) through this disorienting process, and I really can’t thank you enough. This is my first time posting, and I feel like I have nowhere else to turn. My...
  4. K

    Need Advice: Where to Buy Mesh Hoyer Slings

    Hi all, New here, and hoping someone can chime in with some advice. My mother is 87, with delicate skin. The ALS closet loaned us a mesh U sling, but we need one with head support and padded legs (as recommended by our OT). I've scoured the forum and can't find any specifics on suppliers...
  5. Y

    Finger contraction

    Hello, For the past 1 week + I have experience a contraction in my hand/pinky that is on and off. My pinky and hand muscle of my left hand is exp riencing an intermittent spasm. It will come every half hour and stiffen on and off for 5 seconds about 10 times. This has caused come cramping in...
  6. A

    Left arm weakness

    Hi all, I'm 43years old and father of 3. I usually carry around my 2 year old son but this summer I found that my left arm just could not cope more then a few minutes when I usually can carry my son without any problems. I then fractured a finger on my left hand and had a cast for 2 weeks. When...
  7. G

    Freaking out! Would appreciate some input on my symptoms.

    Hi I was wondering if anybody on here could help me. My name is Gerald, I am a 19 year old Caucasian male. I am concerned that I might have ALS or some sort of other motor neuron disease or neurological disorder. Back in August, a twitch developed in my face where just below my left eye almost...
  8. B

    Advice needed from community. Medical mystery

    Hi all, https://www.alsforums.com/forum/do-i-have-als-als/41467-clean-clinical-exam-now-gait-abnormality.html Above is a link to my story till about May/June 2018. I have no idea what’s wrong with me, so I’m posting here looking for direction. I have seen multiple neurologists about my...
  9. K

    Neuromuscular referral

    This is just an update.. My GP is sending me to a neuromuscular specialist in Omaha. He is concerned about all my symptoms and simply stated “I’ve tested most things I can test, and it’s simply out of my knowledge range.”. I’m grateful for him, I had a pulmonary test that came back fine so...
  10. opusensemble

    I guess this is for real

    Dear friends, My story so far was an impressive story of fight for survival. 5 years ago I had a severe adverse reaction to an antidepressant and became bedridden and in extreme suicidal agony for 4 long years. My research was too incredible and extense to condense in a thick collection of...
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