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  1. A

    Update and advice needed

    I had hoped that I would be able to report back with some kind of diagnosis, but unfortunately I still do not have one. Timeline since my last post: -went to a podiatrist. Has a foot MRI which showed all sorts of things such as tendinopathy, mucoid degeneration, joint effusions, tenosynovitis...
    • Andrea1653
    • Thread
    • advice atrophy back bfs breathing diagnosis emg fasciculations female foot frustrated fvc heart mri ohio physical therapy symptoms tests timeline treatment treatments update wanted weakness work
    • Replies: 7
    • Forum: Could this be ALS?
  2. G

    "Right To Try" in Minnesota

    I'm hoping to get BrainStorm NurOwn stem cells. BrainStorm is hoping to get the policy in early June. So I still can play my guitar, play my drums, do yard work and ride my scooter. I can't talk to well. But I'm hoping to get NurOwn.
  3. I

    Neudexta

    I tried taking Neudexta about a month ago but quit after three or four days because I was taking it with my evening pills and it seemed to cause leg cramps. Anyone else having that issue? I think I may try taking it with morning pills because I do really think it may work for me. I know...
  4. J

    Care for CALS

    Hello Everyone, How did or do you find time to take care of YOU?? My husband and I are new into our journey with ALS. I have been told over and over to take care of myself so I can take care of my husband. HOW do you find time??? I need to work full time. I don't want to eat up my "sick"...
  5. A

    16 years on from diagnosis

    Hi folks, (I hope it's appropriate to post this here - my apologies if not - I'm new to the site and I thought this might just help someone...) I was diagnosed 16 years ago. In 2002 I was having falls and finding it awkward to place my feet but I never saw the diagnosis coming. I was just...
    • aitchsee
    • Thread
    • age als book diagnosed diagnosis healing health heart hope life love medicine power reading research support work
    • Replies: 3
    • Forum: Stories of hope
  6. J

    Weird Symptoms.

    First, I want to thank anyone that takes the time to read this post. I have started to develop weird symptoms that I cannot explain and they are causing severe worry. Background information: 24 year old female, decently active, used to play competitive sports. So, the symptoms started roughly 2...
    • Jdgate
    • Thread
    • ankle autoimmune burning clinical female fingers ideas information muscle muscle twitches muscles pain reflex running scared symptoms test twitches twitching urgent weakness work worry
    • Replies: 7
    • Forum: Could this be ALS?
  7. D

    Twitching, throat issues and uncooperative hands

    Hi everyone, thanks for letting me join the forums. :smile: 31 year old male here. My story begins in the end of february, before this my only health issues were constantly feeling a bit tired and some back pains I've been having for some while. After february my body has been acting up in...
    • Deku Stick
    • Thread
    • allergies back cell fingers health heart issues muscle muscles night problems shoulder sleep story swallow swallowing tests trouble swallowing twitching work wrong
    • Replies: 3
    • Forum: Could this be ALS?
  8. A

    Seeking communication support for special friend

    A special friend (David) of mine and my husbands is a 17-year survivor of ALS. David currently has a Tobii Dynavox I-15 (with eye gaze interaction – AAC device) speech generating device. His AAC device is calibrated to his eyes. David was able to communicate (with his wife and family, also with...
    • AnnG
    • Thread
    • aac ability advice als communication dynavox equipment eye eye gaze eyes family friend hope information life medicare movement speech support technology tobii tobii dynavox tobii dynavox i-15 work
    • Replies: 6
    • Forum: General discussion about ALS/MND
  9. C

    Panic Attacks at random times

    I don't know if this is common, but I have been having random panic attacks. I can be doing something or nothing and bam.. it just hits me and I feel like my heart is going to jump out of my chest and I have to leave whatever situation I am in. The doctor tried me on Celebrex? and it didn't...
  10. J

    Newly diagnosed

    Hi All, My husband recently got diagnosed with: BRACHIAL AMYOTROPHIC DIPLEGIA. Is there anyone else on this support group who has this?? All functions work, except both his arms/hands. Also called Man in a Barrel.
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