1. S

    Can we talk symptoms?

    Hello, This is my first time posting and I've only been poking around for a week as it was a week ago that my Neurologist said he thinks I may have PLS. I've only had my symptoms for a year and I know that it can take many more for a definitive diagnosis. With that being said, I'm wondering what...
  2. Nikki J

    What kind of AFO did you/ do you have?

    We have been talking about afos recently and I realized the type you have really matters. A couple of people talked about wearing a hiking boot style shoe with theirs for example which doesn’t work with mine because it has a protruding side piece. I like mine a lot. It is designed to keep my...
  3. O

    Need a Second Opinion

    I started having twitching in my calves on March 20, 2018. It was constant and a bit amusing at first- I would put my leg on my husband and make him feel it going crazy. After several weeks, I started noticing that my legs were getting a jello feeling, especially if I was walking on my...
  4. Kristina1

    trouble with sandals

    I'm guessing this is ALS related? I can still walk but over the last 9 months my gait changed and walking is more difficult. Now that it's warm I brought out my sandals but I can't stop tripping in them. Same for attractive flats. Only my trusty merrels seem to work.
  5. K

    So worried! ALS symptoms.

    Firstly, I would like to thank everyone that has taken the time to read this. It is very much appreciated. For about 6 months my arms ( left arm in particular has felt 'funny'. Like a slight weakness but not enough to even think about properly. But in the last few days it has escalated! My...
  6. blitzc

    Recent Diagnosis

    Hello Everyone! My name is Cathy and am new here and trying posting for only the second time. Not so certain about how the rules and regulations work and feeling a bit apprehensive. What do I say to all of you? I am 53 years old and live in Ohio with my husband. We recently became empty...
  7. E

    Needing some guidance!

    Hello All. I’ve thought long and hard before posting this as I’m very much aware of the daily struggles a lot of you here face. I am however finding myself on this site more and more frequently and feel untill I have my questions answered from people with real life experiences - only then will I...
  8. T

    Atomic Meltdown

    I do not have to explain to any of you how much living with a spouse with ALS SUCKS! I am so very tired! I am sick of putting on this brave face! I am pretty fed up with my husband and his demands! I DO NOT want to be responsible for every little detail of our lives. Paying bills, lawn work...
  9. A

    Hypoflexia? Is this what I am expiriencing?

    Hello everyone, I just want to start off by saying that I know only a doctor can diagnose me with anything. I have also read the stickies and have a few questions about hypoflexia. I realize no one can diagnosis me with anything but a doctor. Like, what is it exactly and how is it diagnosed? And...
  10. A

    Update and advice needed

    I had hoped that I would be able to report back with some kind of diagnosis, but unfortunately I still do not have one. Timeline since my last post: -went to a podiatrist. Has a foot MRI which showed all sorts of things such as tendinopathy, mucoid degeneration, joint effusions, tenosynovitis...