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My dad recently passed after a 2 year battle with ALS. I was his only relative, so by default became a caretaker. I spent hundreds of hours on VA benefits and my Dad's wish was for me to help others. I found PVA and DAV in my area to be of very limited help. They basically got me started and...

Hello everybody. I am a 19 year old nursing student going into my sophomore year. I wanted to start off by saying my heart goes out to everyone dealing with this horrid diease. You are all such strong amazing people and my mother and I are looking to donate to the community and would like to...

Our TV setup is somewhat complicated. We have Cable TV (Verizon FIOS) which feeds into Verizon's Cable Control Box. That feed is then routed to the Onkyo Audio Receiver (which allows me control of various other sources... ROKU, BlueRay, Bluetooth, etc.). I have the Universal Remote Control...

Before I ask my question I will give a little background info on my situation. I was injured in the military and have two discs pushing on nerves which causes extreme pain down to left foot. The VA wants to do disc replacement surgery but I have been holding off as long as possible. I was...

Hello all, I first want to extend my sincere appreciation for the support offered on this forum. I don’t think I could show the bravery, class, and kindness that many of you display so well in the face of adversity. Please know that I am so grateful simply for the opportunity to express my...

hello I can hardly open mouth wide enough to get spoon full of soup or mashed potatoes in. The doctor has me at eighty milligrams Baclofen a day but only gives little relief. My jaw is so tight and teeth are clenched throughout day and night. anyone experience something similar? Did anything...

My mother was diagnosed last year. The majority of her body has succumbed to ALS. She can still speak, move her left arm, and her neck. Over the past few weeks, her mental state has changed. She has always been someone who speaks her mind, and in some cases - should not - but rarely to...

My family and I have been feeling so desperate and confused the past two weeks. My Dad went to doctor initially with weakness in right hand and some muscle wasting in arm (which we thought was from him favouring his left arm for the past year). Doctor sent him to neurologist and during the...

Hello all. I have been seeing a psychologist for the past 2 months and I was doing great until I found another troubling symptom this past 2 weeks. I started to do dumb bell work out at home to try and get back my normal workout routine. I lifted somewhat heavy for me doing curls with 35 lb...

Hi, I apologize for starting a new thread. I had a thread in February but it has been closed. My old thread was “flaccid in a week”. Sounds ridiculous but my muscle do go soft very rapidly. I have been to 3 nuero and a rheumatologist since my last thread. They all agree something is going on...