whine

Let me first say, when she was diagnosed I was dedicated to try to make our/her last years as comfortable and apply as possible. As the two years have passed it has been harder to stay focused on that initial plan. Do any of you have the issue of trying to plan anything? Maybe I am too concerned...

Bit©#, Whine or share your Cheese Come on in We're here to please!

the come for tea and cheese and whine are closed now. Have I missed something or am I doing something wrong?....

sunewun I am just trying to figure out how to post to the different forums. I was just diagnosed....at least I think I am diagnosed. The Dr who did the emg said he thought I had als, though it was not totally conclusive and the Dr. I saw yesterday said he was almost 100 percent certain that it...

Whine and Cheese

When Dr Donofrio (Vanderbilt in TN) "officially" diagnosed me with ALS in Jan of this year I STUPIDLY didn't immediately sign up for the ALS clinic they have there. I called Vandy today and was told I waited too long to come to clinic and would have to see Dr. D again so he could "refer" me to...

This is not a whine or complaint It a stupid observation As a newbie, I understand that everyone is different and no one knows for sure what will develop next, BUT as I am losing arm use and worried what was next I have no idea what is next for sure. I didn't want to use Dr. google, and...

So, in the best interest of my sanity, I've tried to reach out to a "friend." This friend was a childhood friend of my husband and our family friend. I know I gave her my new phone number and she has my email addy. I haven't heard from her or her family. I've called her once since Don...

I just wanted to find a place where we could come to if we don't want to rant, drown our sorrows in liquor or not bum anyone at tea. You can bring the whine, I will be here to serve the cheese. I have 2 wonderful shoulders to cry on and I am open 24/7. Come on in the doors are open.

A few pieces of advice to make your tenure with us more pleasant for all. ALS and the other MNDs are very rare diseases. The incidence of ALS in the modern world is about 2 cases per 100,000 people. That means that there is a 99.998 percent chance that you don't have it, unless a doctor...