what to do next?

  1. P

    One week since diagnosis...

    My girlfriend was told that her symptoms are consistent with ALS a week ago at Mass General Hospital. As I stated in previous posts I have known for a while...and her dirty EMG sent us to Boston for the second opinion/confirmation. The first few days were spent crying/ holding her. She now...
    • pfd161
    • Thread
    • age als ankle boston clinical crying diagnosis dirty emg emg info riluzole second opinion symptoms walker what to do next?
    • Replies: 8
    • Forum: Newly diagnosed
  2. S

    Husband diagnosed Feb. 2017

    Hi, My husband was diagnosed with ALS in February 2017, but the signs and possible diagnosis have been there for some time. During last 2 weeks there has been a decline in his ability to stand and walk. Falls have been a problem for well over a year, but now standing and walking are difficult...
    • Suzanne27
    • Thread
    • ability als decline diagnosed diagnosis husband planning problem walker what to do next?
    • Replies: 4
    • Forum: Current caregivers
  3. C

    I'm Not really sure what to do next??

    Hello to all again... My first post was quite some time ago. 02-15-2014... At that time I was headed to University of Michigan Neurological Dept. for my 1st visit to the ALS Clinic. At U of M I went through a barrage of test, over an 8 month period. I went from possibly ALS, to Possibly...
    • crue1965
    • Thread
    • advice als arm atrophy back ball clinic diagnosed emg insurance ivig medical mmn riluzole shoulder symptoms test weakness what to do next? work
    • Replies: 10
    • Forum: Newly diagnosed
  4. M

    New and unsure of what to do next?

    Hello, I think this is where I'm supposed to be....My name is Megan and my husband was diagnosed with ALS on 3/25/14 it's been 9 months and I think I'm just now getting over the initial shock. We are only 32 years old. I'm shaking as I'm typing this....to he honest, I don't even want to be...
  5. S

    Do I have MMN?

    Have lost the use of my right arm and hand over the course of 2 years. Had CT, MRI, EMG, and ruled out ALS & PD. BUt still no diagnosis of what is wrong. Doctor said it could not be MMN because my arm has recently become spastic and does not recommend the blood test. I am at a loss of what to...
    • Sdumrauf
    • Thread
    • als arm diagnosis emg mmn mri no diagnosis problem test what to do next? wrong
    • Replies: 1
    • Forum: Could this be ALS?
  6. S

    Seeking your Advice, What to do Next...

    Okay this is the second attempt at writing because my first was interminably long. My question is this: What tests do I ask for next, which direction do I go next with my primary care doctor to rule out ALS or know that it is ALS. I either need to move on away from the "fear of possibility"...
    • SRES
    • Thread
    • ability advice advocate age allergies als als? awareness bfs cold diabetes diagnosis fasciculation female foot health information insurance lead life medical motor neuron disease muscle muscles ramp symptoms tests tongue twitches twitching vitamin d walker what to do next? work
    • Replies: 3
    • Forum: Could this be ALS?
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