what to do next?

  1. P

    One week since diagnosis...

    My girlfriend was told that her symptoms are consistent with ALS a week ago at Mass General Hospital. As I stated in previous posts I have known for a while...and her dirty EMG sent us to Boston for the second opinion/confirmation. The first few days were spent crying/ holding her. She now...
  2. S

    Husband diagnosed Feb. 2017

    Hi, My husband was diagnosed with ALS in February 2017, but the signs and possible diagnosis have been there for some time. During last 2 weeks there has been a decline in his ability to stand and walk. Falls have been a problem for well over a year, but now standing and walking are difficult...
  3. C

    I'm Not really sure what to do next??

    Hello to all again... My first post was quite some time ago. 02-15-2014... At that time I was headed to University of Michigan Neurological Dept. for my 1st visit to the ALS Clinic. At U of M I went through a barrage of test, over an 8 month period. I went from possibly ALS, to Possibly...
  4. M

    New and unsure of what to do next?

    Hello, I think this is where I'm supposed to be....My name is Megan and my husband was diagnosed with ALS on 3/25/14 it's been 9 months and I think I'm just now getting over the initial shock. We are only 32 years old. I'm shaking as I'm typing this....to he honest, I don't even want to be...
  5. S

    Do I have MMN?

    Have lost the use of my right arm and hand over the course of 2 years. Had CT, MRI, EMG, and ruled out ALS & PD. BUt still no diagnosis of what is wrong. Doctor said it could not be MMN because my arm has recently become spastic and does not recommend the blood test. I am at a loss of what to...
  6. S

    Seeking your Advice, What to do Next...

    Okay this is the second attempt at writing because my first was interminably long. My question is this: What tests do I ask for next, which direction do I go next with my primary care doctor to rule out ALS or know that it is ALS. I either need to move on away from the "fear of possibility"...
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