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  1. Jamiet

    New ALS Clinic

    Just an FYI for all that are close to me here in Lafayette, Louisiana. The wonderful ladies and my friend with the ALS assn here have finally succeeded in getting the major hospital to open an ALS Clinic here. It will be one day per month to start, but they will see all ALS patients in our...
  2. G

    Advice please

    Hello My dad is 78 and has recently had problems with slurring of his speech and excess saliva. He saw a neurologist at our local hospital who gave him a physical examination but no other tests. Then told him he needed new dentures! My dad has been to the dentist and he said he does not need new...
  3. MtPockets

    Stimulation of Diaphragm Muscle in ALS

    This is information about a trial program to insert electrodes into the diaphragm to help with breathing. You can read the details at: http://mda.org/research/view_ctrial.aspx?id=182 Synapse Biomedical, in conjunction with Case Western Reserve University and University Hospitals of Cleveland...
  4. Jamiet

    For those of us in unknown land...read this...

    I'm not trying give anyone false hope here, only posting what i find to be real, geniune stroies, i've spoken to two of these personnaly. Pay close attention to who wrote the thread, you will see a chain of progress from a few people. For those of us, who are in unknown land (Normal EMG, NO...
  5. K

    Breathing Difficulties Worsened

    I posted a few months ago on this site, but I have a little more information and worsened symptoms, so I just wanted to hear other people's experience with ALS/MNDs. I had several debilitating symptoms that started 3 years ago before the motor nerve involvement, but I won't go into detail for...
  6. W

    Holding a Job with ALS

    I am wondering how many people are still working with fairly advanced ALS. My example would be Stephen Hawking. He is basically completely disabled yet he holds a job and has aides to assist him. It seems like there are jobs that could be performed with fairly advanced ALS. I write software...
  7. W

    Need your vote for ALS project in AMEX funding competition

    American Express is hosting a member survey that will select a worthy project to fund. An ALS project was selected in the top 50. If you are an American Express cardholder, you can vote on the project to fund. See the details here: https://www.membersproject.com/home.action The project to...
  8. Montana Carol

    Just to Get Acquainted

    Hi, All: I'm a 70-year-old resident of western Montana. I've been tentatively diagnosed with ALS after a year or so of progressively worse speech slurring, mild swallowing/choking incidents, and lately some weakness in my right thumb and lots of muscle cramping in jaw, rib cage, forearm, and...
  9. rolark

    Minocycline Adverse Effect

    This was in a newsletter from ALS Association I get monthly. Paul Gordon, M.D., at Columbia University working with Robert Miller, M.D., and colleagues in the Western ALS Study Group, presented a Phase III trial of minocycline that showed an adverse effect in the primary outcome, the ALS...
  10. W

    ALS Survey?

    To All: I was in a local ALS support group meeting and we were brainstorming things to do to cure ALS. This was a offshoot of a discussion we had on the MDA Gift of Time event held here in Denver. Which BTW, was a quite a success. 650 people attending the fundraiser for Augie's quest. But I...
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