My name is Amanda and I am 38. I have had some issues going on and would like your feedback.
1st, I noticed weakness a couple years ago. I went to get milk out of the fridge and noticed a weakness in 1 arm.
I had also noticed twitching and started having panic attacks shortly after, which I...
This post is for those who are currently experiencing numbness and muscle twitching and, like me, tend to automatically assume the worst case scenario.
I felt compelled to write this a year and a half after first experiencing neurological issues because #1, it seems that a lot of folks who...
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Hi ,
male 34 years old, italian (milan).
first of all:
1) sorry for my bad english (I will try to help myself with google translate, anyway you will find many errors in writing in English, sorry)
2) I dont want to be annoying for any of you, I understand very well your sufferings and respect u...
Well, recently been noticing stuff going down the wrong way a bit more often. Still just randomly. Just thin liquids and saliva. Not very often. Saw doc... he says not ALS.. he's not worried and if he was he'd tell me. He asked if I had trouble with food.. and I said no. I asked how he could...
Hey there,
I’d like to start by saying I appreciate those who are going through this illness and vigilant on these forums, as the comfort of having friends with same possible experiences is something that helps with my current fears.
Here’s my last 3 months of hell:
Male Age 29.
Before...
age
arm
atrophy
back
bed
brain
emg
eyes
falling
fibromyalgia
food
headache
lyme
neurologist
night
pain
quality of life
stroke
swallowing
symptoms
taste
twitching
urgent
vision
weakness
weightloss
wrong
My father has been suffering from upper motor neuron signs over the past three years, with no apparent lower involvement (clean EMG and still no fasciculations), which led doctors to think of PLS. In a second EMG, the results are indicative of "mononeuritis multiplex or motor radiculopathy", but...
Yay...I received my new sling this week from the Osprey sling company in England. It fits better and is much more comfortable. I was afraid my arm was going to break with the other one. The new one was 1/3 the cost of the old one. They don't ship to the US but if you have a friend in...
My father was diagnosed with an ALS or a very similar condition. He was treated in a third world country, which cannot pride itself with very advanced diagnostics, so I thought that it would be worth to ask for a second opinion online. I'll try to be very concise.
60 year old, male, 80kg...
Hello All. I’ve thought long and hard before posting this as I’m very much aware of the daily struggles a lot of you here face. I am however finding myself on this site more and more frequently and feel untill I have my questions answered from people with real life experiences - only then will I...
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My husband was diagnosed in May 2017, but we can look back and see symptoms that we didn't recognize in August 2016. He had his first ALS Clinic visit in June 2017. At that time his Forced Vital Capacity (FVC) was 3.9 and they said his lungs were great. It dropped to 3.6 in October and 3.3 in...