1. A

    So worried

    6 months ago I had weakness on my right side, numb tongue, facial numbness, followed by fasiculations in my tongue and my entire body. Fast forward and I have right foot drop burning tongue, difficulty swallowing I just left the hospital after an endoscopy, swallow study and a manometry, clean...
  2. E

    My story

    Hello, I want to share with you our story in full. There are bits and pieces all over the forum, but I wanted to gather everything together. My father received a final diagnosis of MND yesterday. My father (60) started experiencing symptoms quite a while ago, around the winter of 2016. He...
  3. W

    Looking for a glimmer of hope

    Hello Everyone, I would like to start off with saying that I have utmost respect to all of PALS and CALS who despite the illness did not forfeit and are fighting and living each day as happy as it's possible. I have lurked the board for 2 months (read ALL stickies) now and I've decided I...
  4. A

    Probable ALS - no diagnosis

    First off, I want to thank you all so much for the invaluable wisdom so many of you have shared here. You have helped so many (including me) through this disorienting process, and I really can’t thank you enough. This is my first time posting, and I feel like I have nowhere else to turn. My...
  5. K

    Howdy, and Here's My Story

    Hello all, I've been combing the forums for a month or so, mostly because I'm not sure how to manoeuvre around here. I've been learning a LOT from forum, so many helpful people, and especially I've been feeling like I'm getting to know some of you, if not by actual name, then by user name...
  6. L

    Atrophy in bicep

    Hi, first off would like to thank u guys in advance. I noticed atrophy in My lower bicep. My orthopedic did a MRI of My neck shoulder and bicep. Stated I have a bunch of issues but nothing that stands out as a cause. My strength appears normal as it was tested by My PT. My reflexes in the...
  7. S

    Absolutely devastated

    I'm just going to keep this short as I'm already 99% sure I have ALS and just want someone to confirm that my hands look like split hand syndrome. My symptoms started back in June of this year when I was pregnant with my son. I started to have random twitches all over which I still have today...
  8. V

    Drop foot query

    Dear All As some of you know, I lost my Dad to ALS four years ago in August 2014 and have struggled with both grief and health anxiety as a result. The health anxiety was terrible after my Dad passed, and it manifested itself in lots of "twitching" which was diagnosed as BFS from...
  9. H

    ALS Symptoms - worried

    Hi, I am new to this forum. I’m going to try keeping this short. I am 29 years old and since the beginning of August I’ve been experiencing weakness/tightness in my right leg. It was mild then, but has gotten worse over the couple months. Sometimes I want to pull my leg because of weird...
  10. D

    Neck Brace for Driving

    I have found some weakness in my neck. When driving it is tiring to hold my head up for long periods. Does anyone have any suggestions for a brace?