wanted

Today I had my remaining crown replaced with a temporary. In two weeks I'll go back for the permanent. The last thing I wanted to happen was for a cracked crown to break off when I'm not as mobile as now so I had it done. They had all the info in my chart and there was a new dentist only 28...

I posted here several months ago but that thread is closed. I just wanted to let you know I was diagnosed with Painful Legs Moving Toes which is less common than ALS supposedly. Go figure...but it is not deadly. Add to the list of diagnoses if you like.

Hi Everyone, my name is Juri. I have been living with ALS for 12 years now, and I had been gone from this site for about ten years, and during that period of time my FRS dropped from 23 to 1. I am on vent 24/7 (with the use of tracheotomy), I use an eye gaze computer for communication, and I...

Hello everyone. I'm new on here have alot of fears and anxiety about ALS. I have not been diagnosed. I've had four opinions from 4 different doctors that say I do not have that. I do have an EMG schedule in 3 weeks. I've been having a lot of pain in my legs feet arms. I would say minimal...

Thank you for taking the time to read what I have going on. I am a 44 years old mom of two adult children and a 10 year old. Last month, my boss called an ambulance and had me taken to the hospital because I was having problems talking, couldn’t swallow and couldn’t lift my leg and I panicked...

Hi everyone. Thank you for welcoming me onto this site. I read the sticky, so I'll try my best to adhere to the statements there. I'm 27, female, and have been having concerning symptoms since mid-September 2018. Symptoms first started in my left hand and forearm. Started with twitching and...

Hey everyone! Today my father had a breathing exam and, as it has been the case since he is testes, the results were perfect. In the past two years and a half since first measured, there has been no observable decline as measured by any indication of respiratory function. Given these results...

Hello, first of all thank you for letting me join this forum. I’ve been dealing with some symptoms in the last month and I wanted to ask your opinnion about it. I’m 40. For some time I had some numbness in my hands, legs and upper lip so I had an appointment with neuro to see if something...

Hello I'm sorry to bother you I'm not sure if you remember me my husband thought he had Als but his emg only showed signs of myopathy. I have let the thought go but yesterday we went to Parkland for a clinical exam with a neuro and we suspected that after seeing the emg they would do a muscle...

My PALS has been using a Trilogy for the past year. His latest FVC was 26%, with MIP at 20 and MEP at 32. We can tell his weakening muscles continue to affect his breathing, just since Clinic in February. He had some issues with air hunger at night and increasing EPAP from 6 to 8 took care of...